0:00:01.520,0:00:03.920
I'm gonna say something really quick 
and then I'll let you guys introduce

0:00:03.920,0:00:15.680
yourselves and you have I know that. 
So that's my only stop and start it.

0:00:15.680,0:00:20.400
You just want to share it whenever whenever the 
time seems right whenever it's oh gosh full body

0:00:20.400,0:00:32.800
like it may just come up and I can talk about 
it then or I can talk about it at the beginning

0:00:32.800,0:00:34.800
she wants to talk about this is 
what she wants to talk about. So,

0:00:34.800,0:00:39.360
this is a step-by-step thing that's given to 
her about how to sign for Medicaid. Yeah. In

0:00:39.360,0:00:46.080
the enrollment. Yeah. This is what they gave us. 
So, where Okay. So, anyway, she just wanted to

0:00:46.080,0:00:49.680
make sure that that was shared with parents. 
Oh, she can cover this. Yeah, she's going to

0:00:49.680,0:00:54.480
Yes. But you all let her know when she needs to. 
Okay. So, this is what they sent me from seven

0:00:54.480,0:01:07.520
counties. This is exactly thing and just all the 
steps. But the only thing I don't see on this one

0:01:07.520,0:01:11.040
Oh yeah, that doesn't contain the list 
of what you need before you call. So

0:01:11.040,0:01:15.520
that's what she might still have it. She 
just sent me. That's all I That is like

0:01:15.520,0:01:20.240
creeping me out. But it's so I really 
think somebody smaller should be in the

0:01:20.240,0:01:27.280
front center of that. This is I'm not 
even going to look in that direction.

0:01:32.640,0:01:42.880
I mean, seriously, it's just 
like the side of a barn.

0:01:42.880,0:01:48.880
We will go ahead and get started. We are 
recording. Um, so we will put this on the

0:01:48.880,0:01:54.320
website download. Um, but we are here to welcome 
our presenter. So, I'll let you guys introduce

0:01:54.320,0:02:02.240
yourselves. Hi, I'm Gail Day. I'm a social worker 
with Cedar Lake Lodge. Mary Allen, executive

0:02:02.240,0:02:08.640
director of Cedar Lake Residences. Jessica Adams, 
social worker at Parkways in Sycamore Run. So,

0:02:08.640,0:02:13.760
basically, we're all with Cedar Lake Lodge. Couple 
of things I want to start with. Um, a lot of the

0:02:13.760,0:02:17.920
information you're getting tonight is from Cedar 
Lake Lodge, but when we come to the schools,

0:02:17.920,0:02:23.360
those of you who came before remember me saying 
that I'm really not here to sell Cedar Lake Lodge.

0:02:23.360,0:02:28.560
I mean, basically, there's all kinds of providers 
that do what happens in the waiver. Everybody

0:02:28.560,0:02:33.600
serves a burger, fries, whatever. You choose 
where you want to go to get it. Um, but what

0:02:33.600,0:02:41.600
we do want to do because I am in the ICF, which 
is the um Medicaid facility, not waver. Okay,

0:02:41.600,0:02:48.160
this is more of a high need Medicaid facility. I 
get calls a lot from people who are in desperate

0:02:48.160,0:02:54.720
situations, families who um neighbors who this 
woman across the street has passed away and her

0:02:54.720,0:02:58.640
son lived with her her whole life. She never 
even got guardianship. She never did anything.

0:02:58.640,0:03:04.400
I don't know what to do. I get those calls and 
I So, in order to try to avoid that happening,

0:03:04.400,0:03:09.520
that's kind of why we wanted to get out to the 
schools. The other one I get a lot is um a call

0:03:09.520,0:03:14.880
in January saying, "I know it's early, but my 
kids's graduating in May, which is, by the way,

0:03:14.880,0:03:20.640
not early." And um so what do I do? How do I pick 
this and that and the other? And it's like, do you

0:03:20.640,0:03:25.360
have a waiver? No. What's that? Okay. Well, you're 
not going to be picking much without a waiver. So,

0:03:25.360,0:03:33.760
we talk about some of that. Um Mary's our expert 
on the waiver. I want to start with that. Um I

0:03:33.760,0:03:37.760
have not worked waiver in a long time. I can tell 
you a little bit about the broad differences but

0:03:37.760,0:03:43.760
in terms of all the specifics. What I wanted to do 
though, what I wanted to start with is since you

0:03:43.760,0:03:49.680
guys asked for this, which by the way, who is the 
parent? When we were here last time, thank you.

0:03:49.680,0:03:55.680
One of the things that I said is if you want to 
make a difference in services for your children,

0:03:55.680,0:04:01.360
get together. Do not depend on us. Do not depend 
on DDI. Do not depend on anybody. Get together,

0:04:01.360,0:04:06.400
educate each other, and learn the system. if 
this one understands social security and this

0:04:06.400,0:04:10.880
one doesn't, you can help each other. And my 
understanding is somebody did that. You were

0:04:10.880,0:04:16.400
inspirational. Oh, that's so great. I'm just so 
excited to hear that. So, we'll we'll we'll take

0:04:16.400,0:04:23.440
this moment, if it's okay, to let everybody know 
that on um January the 27th will be our ne the

0:04:23.440,0:04:31.120
next OC cares meeting. And that is the the parent 
networking and the and the family um support that

0:04:31.120,0:04:36.240
we've set up until February 27th. Oh, no. But 
January 27th, sorry. Two weeks from today. Yes.

0:04:36.240,0:04:41.200
Basically, two weeks from today. Is that going to 
be here as well? Yes. Yes. Yes. It's here. Why?

0:04:41.200,0:04:45.840
We send it out um an email as well. We'll send the 
flyer out and so watch for that. And then I don't

0:04:45.840,0:04:49.760
know if you saw the handy dandy digital board 
that's right out here. We have it up there too

0:04:49.760,0:04:54.960
as a reminder that the date's coming up. So, and 
yeah, I I can't tell you how excited I was to hear

0:04:54.960,0:05:02.160
that. That really is. you will get more help, 
more assistance, more support from each other

0:05:02.160,0:05:06.880
than you will ever get from one of us because 
it's we're not in the trenches of it. We are,

0:05:06.880,0:05:13.520
but in a different way. Um, so what we think we're 
explaining in a very easy way, you may be like,

0:05:13.520,0:05:18.800
I have no idea what they're talking about. They 
said hoopa he and I have no idea. So that works

0:05:18.800,0:05:24.240
out really good for us. But evidently, you guys 
decided to invite us back because you had more

0:05:24.240,0:05:29.840
questions. So, I thought we would start with kind 
of getting an idea of what those questions were.

0:05:29.840,0:05:33.920
So, if you could, if we leave here tonight, 
there's one thing that you absolutely want to

0:05:33.920,0:05:39.120
make sure we cover. Let's go ahead and talk about 
what that is and get it on the list because a if

0:05:39.120,0:05:43.200
it's not something we're know the answer to, we 
can tell you, okay, you're not going to know that

0:05:43.200,0:05:51.760
when you leave today, but we'll find out or b, 
we can make sure that we do cover it. Okay. Uh,

0:05:51.760,0:05:58.560
so I've been trying to apply for Medicaid for my 
seven-year-old. We have triedare and they've made

0:05:58.560,0:06:06.320
it impossible. Is Triricare and Medicaid something 
that we can't do together? Okay. So, when you get

0:06:06.320,0:06:10.720
into specific Medicaid questions, remember we 
talked about when y'all do your family thing,

0:06:10.720,0:06:16.400
inviting spec specialists within that specialty, 
you really need to talk about Medicaid. I can tell

0:06:16.400,0:06:20.400
you that I heard somebody else talking about 
not being able to get their child on Medicaid.

0:06:20.400,0:06:29.360
Medicaid is is a um monetary limit. Okay? So, 
everybody says, "Well, if they have a disability,

0:06:29.360,0:06:34.480
they can get on Medicaid." That is true. Once 
they're 18, they're an adult. They have no

0:06:34.480,0:06:40.480
income. If they're still a child and you're making 
more money than would be eligible for Medicaid,

0:06:40.480,0:06:44.560
then that child's not going to be eligible for 
Medicaid until they become their own guardian.

0:06:44.560,0:06:51.040
And it's their just their income. that they 
they can be under 18 and have medication. Well,

0:06:51.040,0:06:58.160
I'm wrong. Yeah, cuz she's got it. She's Did you? 
Yeah, that's how you do it. Came out. Okay. See,

0:06:58.160,0:07:04.880
this is But then they only look at their the 
the individual kids like your kids income or

0:07:04.880,0:07:10.320
what they own and then that but their income they 
can count no income for like a 10-year-old. Yes,

0:07:10.320,0:07:18.560
that's how they So, do you happen to know the 
answer to the question? She does not. Okay. So,

0:07:18.560,0:07:23.920
what was you have? What she has try care. So, 
I can just very very minimally speak to that.

0:07:23.920,0:07:32.480
And yes, they don't like each other. It's been 
helpful. So, they don't like each other. And and

0:07:32.480,0:07:37.840
I'm just speaking from personal experience as a 
former case manager. It is extremely difficult

0:07:37.840,0:07:45.120
um near impossible to carry Triare and 
Medicaid. Okay. Uh I I'm glad I'm not an idiot.

0:07:45.120,0:07:49.840
I don't want to say don't exhaust your efforts 
because absolutely exhaust your efforts and and go

0:07:49.840,0:07:57.200
through the system. Um, and if you're struggling 
at the local Medicaid office, my recommendation is

0:07:57.200,0:08:03.440
to contact Frankfurt cuz they have a a liaison. I 
don't have that person's contact information, but

0:08:03.440,0:08:09.680
if you give me your information um this evening 
before you leave, then um I have that at my desk

0:08:09.680,0:08:14.480
and I can pass it over to you. I forgot the cards. 
last time I had cards so you could write your name

0:08:14.480,0:08:18.880
and your question and we would make sure we got 
back to you. So, we'll try to figure that out.

0:08:18.880,0:08:23.600
And I apologize that's obviously changed. I told 
you it's been a while since I did that. Um, yeah,

0:08:23.600,0:08:28.560
because we have we have littles on we have lots of 
people on Michelle that are under 18 and they have

0:08:28.560,0:08:34.000
to have Medicaid. Now, is that regular Medicaid 
or just waiver? Waiver Medicaid. Okay. So, that

0:08:34.000,0:08:39.760
that's okay. So, I I have to say waiver Medicaid 
is different than straight Medicaid though in

0:08:39.760,0:08:44.640
terms of like going to your doctor and stuff like 
that. That one is still income based, correct?

0:08:44.640,0:08:52.240
Okay. So, about four to five years ago, I have a 
daughter and she's on the autism spectrum. I tried

0:08:52.240,0:08:57.200
to get her on Medicaid at the Social Security 
office. They denied me because they said I made

0:08:57.200,0:09:03.600
too much money. Um, she's had the diagnosis from 
Wise Cross since she was like 2 and a half years

0:09:03.600,0:09:11.840
old. Um, she's getting ready to turn 18 in August. 
Um, I've just learned now after a nine-year wait

0:09:11.840,0:09:17.680
that we're eligible now for Michelle P. Waiver. 
It's extremely confusing because I've been

0:09:17.680,0:09:26.480
trying to go to the office in Lraange and I've 
been told through this crazy computer system

0:09:26.480,0:09:34.000
uh to like what they need. I'll take it to them. 
They will put it in the system. Then I get another

0:09:34.000,0:09:41.280
uh notification saying we don't have this. you 
need to submit this. I've done that four times

0:09:41.280,0:09:47.680
now with four different pieces of information. Um, 
what do I need to do? Do I need to just schedule

0:09:47.680,0:09:54.240
an appointment with somebody and sit in front of 
somebody? So, is this documentation uh through for

0:09:54.240,0:10:00.640
Medicaid or for your waiver? It's I I think it's 
for the Medicaid. It's very confusing. Yeah. So,

0:10:00.640,0:10:07.200
the system you're talking about is connect. Oh, 
that's awesome. Yeah. My suggestion is to make an

0:10:07.200,0:10:11.840
appointment. Okay. Can I So, do I just go up 
to the Lrange office and make an appointment

0:10:11.840,0:10:18.880
with them? Yeah. Social security. Can I Can I just 
say I've had the same issue and I've just walked

0:10:18.880,0:10:23.440
in there one day. There was literally no one there 
and the lady submitted my stuff and it was so much

0:10:23.440,0:10:27.440
easier and I wish that I had known that. That's 
what I've done four times now. Yeah. I had the

0:10:27.440,0:10:31.840
same problem. It just kept saying it wasn't there 
because apparently they couldn't read it. Yeah.

0:10:31.840,0:10:35.920
Connect was like, "Oh, well, you haven't submitted 
this." and I submitted it like two weeks ago. I

0:10:35.920,0:10:40.960
would get letters like every single day and I just 
kept picking it up and finally and part of the

0:10:40.960,0:10:46.640
issue is what we were just talking about as far 
as Medicaid. People think of Medicaid as kind of

0:10:46.640,0:10:53.360
in in some ways it's all one umbrella in terms of 
but it it breaks down into separate. So just like

0:10:53.360,0:10:59.120
um there's straight Medicaid which is what pays 
for ICF. Okay. Title 19 Medicaid, same thing. Pays

0:10:59.120,0:11:04.400
for nursing homes, pays for ICFs, pays for Okay, 
that that's just your straight Medicaid. It's very

0:11:04.400,0:11:10.800
income based. Um, and it is um for adults blah 
blah blah typically, although children have it

0:11:10.800,0:11:16.240
too, depending on income. And then, but remember, 
we talked for those of you here last time about

0:11:16.240,0:11:22.320
those who are on the waiver are going to end up 
getting Medicaid regardless of income because of

0:11:22.320,0:11:28.800
the waiver being paid through Medicaid. Okay. And 
I it's Optimum Choices. Ours is Optimum Choices

0:11:28.800,0:11:33.120
Medicaid to the W, but it's still Medicaid. So 
people were like, "Well, how'd you get Medicaid

0:11:33.120,0:11:37.440
and I didn't?" Well, you have a waiver and your 
waivers's paid through Medicaid. If you tried

0:11:37.440,0:11:42.080
to use that Medicaid to pay for something that's 
not covered under the waiver, it probably I don't

0:11:42.080,0:11:46.960
know that it would work for you. I don't think it 
would. They use it for their healthare that she

0:11:46.960,0:11:52.960
eligible for Michelle P now. So now she would be 
eligible for Medicaid. And then they were telling

0:11:52.960,0:11:59.120
me I was applying for the wrong type of Medicaid. 
Yeah, that's so you want waiver Medicaid. Tell me

0:11:59.120,0:12:04.640
you want waiver Medicaid. You've gotten your still 
going on. It's been like six months and they still

0:12:04.640,0:12:09.920
keep telling me the same things. But they keep 
saying eventually it will get approved because

0:12:09.920,0:12:13.760
you do qualify for Michelle P. But you still have 
to jump through all the hoops to get all the stuff

0:12:13.760,0:12:18.800
there. That's the thing. I know which hoops I 
need to jump. I know. It's just not knowing what

0:12:18.800,0:12:22.640
terminology to use. Like you don't know to say, 
"Well, I need the waiver Medicaid." You know,

0:12:22.640,0:12:27.120
you're like, "I can talk to you like you've been 
in the system for 50 years." You know, like,

0:12:27.120,0:12:32.080
so I don't know. So, am I applying for Medicaid or 
I'm playing for waiverbased Medicaid? Waiver-based

0:12:32.080,0:12:38.720
Medicaid. You want to tell him you want waiver 
Medicaid? Optimum choices is usually the the okay

0:12:38.720,0:12:46.960
a put you in. So, apparently we missed in the mail 
that he had finally gotten the Oh, no. Yeah. So

0:12:46.960,0:12:52.800
is the only benefit of that is that he could get 
Medicaid before he's 18 or is there no not at all?

0:12:52.800,0:12:59.440
Of course not. Yeah. Um he got the the Michelle P 
or the SCL. Yeah. Well, we didn't get it because

0:12:59.440,0:13:07.280
it was just lost. Which which way? Michelle 
Michelle. Yeah. We were unable to Yeah. Yeah.

0:13:07.280,0:13:17.520
Well, I mean we we do. So, when you have a waiver, 
you have a case manager and uh case managers help

0:13:17.520,0:13:28.240
facilitate any uh person centered services uh 
that they might need. Uh I'm there's a an array

0:13:28.240,0:13:35.280
of services that are available. examples, behavior 
supports for consultative clinical interventions,

0:13:35.280,0:13:44.720
uh personal assistance, homemakers, uh attendant 
care, CLS, um community living supports,

0:13:44.720,0:13:52.800
um day program will be a big one, day program, all 
dependent on what that individual need is of that

0:13:52.800,0:14:02.560
person. And so you have access to that through 
your waiver services. Um and then then you does

0:14:02.560,0:14:11.280
make you eligible for the healthcare insurance 
side of things as well. Um pair of last resort. So

0:14:11.280,0:14:15.840
like still in the school system, they're not going 
to cover something that you're receiving through

0:14:15.840,0:14:25.280
the school system. Uh but in the summertime 
uh weekends after school type things working

0:14:25.280,0:14:35.920
collaboratively with the team kind of plan so that 
once school's overly just wear this thing so that

0:14:35.920,0:14:41.840
once school's complete hopefully uh he's you know 
reached maximum potential and then as you continue

0:14:41.840,0:14:47.600
to enhance services they'll be as independent 
um as they possibly can be. Uh if you missed

0:14:47.600,0:14:54.240
your time slot, I would just encourage you to um 
there is a usually in your letter there should be

0:14:54.240,0:15:02.160
an appeal and and how to appeal that contacting 
them, reaching out or getting back on um on the

0:15:02.160,0:15:10.080
wait list. So let's rather than going into let's 
make sure we I catch all the questions that we

0:15:10.080,0:15:16.800
want to try to get to um without necessarily 
answering them right. Oh, you're so mean. Um, what

0:15:16.800,0:15:22.080
other questions do we have? You know, I'm going to 
give it right back to you. Um, I was just wanting

0:15:22.080,0:15:28.480
to know if like if you know my daughter, she has 
autism. How do I apply for the healthy waiver? Her

0:15:28.480,0:15:34.240
therapist is telling me that I need to do that. 
Try Medicaid and said no. So, I'm just don't know

0:15:34.240,0:15:39.680
what to do next. All right. We'll get to that. 
That's actually in your folder. All right. What

0:15:39.680,0:15:50.080
else? Um, I'm late to digging in on all of this. 
Uh but is there like a broad like if this is the

0:15:50.080,0:15:57.040
order of applying for things like should I do a 
waiver first or should I do medication? Like I I

0:15:57.040,0:16:06.000
don't know what it is the order of events of what 
to apply for and it sounds like they are a domino

0:16:06.000,0:16:13.200
of what to do. So is there a proper order to do 
things or a most advantageous way to do things?

0:16:13.200,0:16:18.960
Um, I think it depends on the person's needs, 
but um, I personally, if I had someone with

0:16:18.960,0:16:25.680
an intellectual disability, I would definitely 
get on the waiverss waiting list regardless. Um,

0:16:25.680,0:16:31.760
in terms of community supports and stuff, that's 
kind of a must. When we get into what we do as

0:16:31.760,0:16:35.440
far as facility, that's really going to depend on 
whether or not you need to be on our waiting list

0:16:35.440,0:16:39.520
because our waiting list is more for people with 
really high medical needs, really high behavioral

0:16:39.520,0:16:45.280
needs, things like that. So, you may not need 
us initially, but you're going to need her. Um,

0:16:45.280,0:16:50.640
in terms of the waiver when they graduate school, 
the day program has to have a funding source. You

0:16:50.640,0:16:54.880
have to be able to pay for the day program and 
that's going to be job and are all have Yeah,

0:16:54.880,0:17:01.280
that's true. Or job coaching. That's true. Um, 
if they're going on that track, cuz that's a

0:17:01.280,0:17:04.960
different track here. The ones that are going to 
college and getting jobs and things like that. You

0:17:04.960,0:17:10.080
have to go to college to have a job. Well, I know. 
But anyway, the ones that are going careerbased is

0:17:10.080,0:17:16.320
a different track in the special ed system. But 
um for the most part, my understanding was these

0:17:16.320,0:17:21.360
guys probably wouldn't. It depends. It depends 
upon if they're alternate diploma or if they are

0:17:21.360,0:17:26.640
regular diploma. So students in special ed can be 
regular diplomas. And ODM County has some great

0:17:26.640,0:17:32.560
resources for job placement. Um so that would 
be good and that doesn't require a waiver once

0:17:32.560,0:17:39.920
they graduate. No, there actually we still have 
um there's a there's jobs opportunity in bothcl

0:17:39.920,0:17:45.120
and Michelle P waiver. Well, and even without 
the waiver, there's some state Kentucky staterun

0:17:45.120,0:17:50.800
um job opportunity centers and things that can be 
helpful for you on that. Um but as far as how to

0:17:50.800,0:17:55.840
apply, it depends on what they want because she's 
right. What if your daughter doesn't I mean she

0:17:55.840,0:18:00.240
can live in an apartment and she can have a job 
and she just needs somebody to come in maybe once

0:18:00.240,0:18:05.200
a week and help with something then you know 
that's totally different than somebody who's

0:18:05.200,0:18:11.360
going to need a whole lot of medical care. Um I 
would say to educate yourself on all of them to

0:18:11.360,0:18:18.800
decide what you need to apply for. Um Medicaid, 
guardianship, all that's going to happen at 18

0:18:18.800,0:18:22.720
though, which you guys know that when I first 
started families didn't know that. They used

0:18:22.720,0:18:27.440
to look at me like I was crazy when I'd say, you 
know, do you have guardianship? They were like,

0:18:27.440,0:18:33.920
their mother was like, I'm sorry. If you need 
information on guardianship, um, I've got that.

0:18:33.920,0:18:39.600
And so you can go to our website, too, which 
is the ECS website. It's county schools. Um,

0:18:39.600,0:18:45.760
and we have all of those forms and things listed 
on there as links. But I'm Angela Lang is my name,

0:18:45.760,0:18:51.600
LG, and I'm the college and career readiness coach 
for the district. So you you can email me and ask

0:18:51.600,0:18:55.440
me if you can't find it and that's fine or you 
can email me. I'm more than happy to just get

0:18:55.440,0:19:00.320
it to you and you can link to that. But I that's 
my job. That's what I do with all of our kids,

0:19:00.320,0:19:05.280
not just our students in special education, but 
all of our students in Olden County. And so um

0:19:05.280,0:19:11.840
I I can help you. I'm not this is not my This is 
why I bring in the experts and and I call Sherry

0:19:11.840,0:19:15.520
for lots of things, too, because I don't know the 
whole Medicaid thing either as much as I've been

0:19:15.520,0:19:19.840
doing it. But um when we look at guardianship and 
that kind of stuff, I'm definitely can can help

0:19:19.840,0:19:25.760
out with that for sure. So yeah, so just reach out 
to me. What other questions? I've got two things

0:19:25.760,0:19:30.480
I think maybe they want to know. What do they need 
when they apply? What are the form documents forms

0:19:30.480,0:19:39.760
all the things? And how does uh does OVR and do 
you all intertwine that OVR and Medicaid? Mine

0:19:39.760,0:19:46.160
does. Yes. They they will learn about Office for 
Vocational Rehabilitation when their kids get into

0:19:46.160,0:19:51.520
high school. We we are our our troops are supposed 
to be telling you all about that. Um but um just

0:19:51.520,0:19:57.680
how do those connect with each other and how do 
they work together coordinating with Oh yeah. and

0:19:57.680,0:20:09.920
waver. Okay. Any other question I'm familiar like 
zero knowledge in this but you mention about that

0:20:09.920,0:20:16.240
you prepare the kids to go for job and you know 
with assistance but what if the student want to go

0:20:16.240,0:20:25.280
to college is it covered with this guardianship or 
not the cost of college no not the cost like there

0:20:25.280,0:20:31.920
will be available if the student want to go to 
college like he doesn't want to work he want this

0:20:31.920,0:20:37.440
invitation. He's accepted. Yeah. You want to put 
that on the list and we'll cover it or you want

0:20:37.440,0:20:50.000
me to go ahead and answer? You can go ahead. Um, 
wait. Walking away from me on the camera. Yeah. Um

0:20:50.000,0:20:58.400
so if someone is interested in going to college 
that's absolutely a choice and and what type of

0:20:58.400,0:21:06.880
program and and assistance that they receive from 
the college is going to vary from university and

0:21:06.880,0:21:14.720
uh techn tech school or whatnot. And so how 
the waiver will walk parallel beside that

0:21:14.720,0:21:22.560
really varies depending on what the colleges 
and universities supply. Often times they'll

0:21:22.560,0:21:28.400
the universities are required to have aids to 
sit with them during class, not takers, things

0:21:28.400,0:21:37.680
of that nature. uh the waiver cannot be used to 
uh help with homework uh or attend class, but if

0:21:37.680,0:21:46.720
they need additional assistance like um making 
getting there getting on getting there on time,

0:21:46.720,0:21:53.600
uh transitioning from one activity to another 
activity. So yeah, the short answer is yes.

0:21:53.600,0:22:00.160
The waiverss can run parallel to admission to 
university and work alongside university supports

0:22:00.160,0:22:07.040
uh at the same time uh that they have a waiver 
allocation. We have a lots of individuals who

0:22:07.040,0:22:13.520
work on different types of certifications and 
various levels of degrees throughout the course

0:22:13.520,0:22:19.120
of their their time on the waiver. And that's not 
a problem. And you could kind of if you're trying

0:22:19.120,0:22:24.560
to figure out what does that look like, you can 
kind of think about what does it look like for

0:22:24.560,0:22:30.160
one of your children to be in school right now 
and also simultaneously be receiving the waiver.

0:22:30.160,0:22:35.040
The waiver cannot duplicate services that are 
available through that educational source,

0:22:35.040,0:22:42.240
but they can run side by side with each other. So, 
if the school offers tutoring, the waiver wouldn't

0:22:42.240,0:22:47.440
cover that. But if the school doesn't offer Don't 
you dare a way for them to get there, the waiver

0:22:47.440,0:22:58.160
might be able to help with that, right? Anything? 
So, okay. My friends go to and I've been told this

0:22:58.160,0:23:02.960
since he was four. You need to get in there and 
sign up for this. And I'll get the paperwork and

0:23:02.960,0:23:09.120
then I get so intimidated and then I don't do 
it. And so I just need a sort of kick in the

0:23:09.120,0:23:19.840
pants because it needs done, right? But are there 
pants kickers? I think that's what you already

0:23:19.840,0:23:25.280
give a small pep talk. This is the perfect time 
for me to give a pep talk. Okay. Yes. I'm not

0:23:25.280,0:23:32.560
stepping on any toes. I'm giving I'm giving 
motivational get up there and put the put the

0:23:32.560,0:23:41.120
thingy on. though I've not practiced this. I've 
not practiced it. I feel like we're passing the

0:23:41.120,0:23:50.480
tool. I know. I've not practiced this, but um 
I do want to just say okay. So, no, no, no. So,

0:23:50.480,0:23:58.800
first wait, can if you're willing to share who 
already is has a child on a waiver in this group

0:23:58.800,0:24:07.680
wait list or uh Okay. Well, that's first. Anybody 
with a child on the on a waiver on a wait list?

0:24:07.680,0:24:17.360
Good. Good. Oh, okay. Okay. Okay. Awesome. So, 
everyone else is hoping to be signing up for

0:24:17.360,0:24:24.480
that. Okay. So, if you've not already, you already 
sound like you're kind of far down a path. So,

0:24:24.480,0:24:29.680
down the road. I'm not Well, you can use whatever. 
If you're getting a show, then you must have been

0:24:29.680,0:24:33.760
on the waiting list. Oh, we've been on the waiting 
list for nine years. Okay. Well, that you're

0:24:33.760,0:24:38.960
you're you're making I mean, you're farther ahead 
than you might think that you are. So, way to go.

0:24:38.960,0:24:44.800
I'm so scared I'm going to lose it because I don't 
know what to do next because they keep getting my

0:24:44.800,0:24:50.800
paperwork messed up. That is definitely going to 
happen. So, part of my speech is that is going to

0:24:50.800,0:24:56.080
happen constantly, okay? And it's not your fault. 
It's just going to happen all the time. It happens

0:24:56.080,0:25:03.840
to every single person. So, yes, you have to be 
on your toes and watch it, but it's not because

0:25:03.840,0:25:08.960
you're screwing up or anything like that. So, 
if you've not already started the process,

0:25:08.960,0:25:15.920
this is what I would tell you to do to start the 
process. Use this piece of paper that I put on the

0:25:15.920,0:25:26.080
table. Um, I am not good at making fancy posters, 
but I put this together. So, um, what I would tell

0:25:26.080,0:25:35.920
you to do is your child has a disability. Okay? 
That is why you are able to sign your child up

0:25:35.920,0:25:41.360
for Medicaid. Okay? If someone tells you you make 
you don't make enough or you make too much money,

0:25:41.360,0:25:49.360
your family makes too much money, stop. Like, 
stop because it is your let's pretend your kid

0:25:49.360,0:25:56.560
is nine years old. that person unless they have 
um inherited a whole bunch of money, they don't

0:25:56.560,0:26:02.480
have any assets. Okay, maybe they have, you know, 
birthday money that their grandma gave them, but

0:26:02.480,0:26:16.160
like they don't have money. So, the other thing I 
wanted to tell you just um is that it is not easy.

0:26:16.160,0:26:23.680
It is difficult. It will not go smoothly. it will 
take you longer than you thought it would. Um,

0:26:23.680,0:26:31.280
you will get mixed up answers or the person that's 
helping you is submitting the wrong form. Okay,

0:26:31.280,0:26:38.000
these are things that I know that have actually 
happened. Okay, so it takes a long time. Um,

0:26:38.000,0:26:42.160
you're going to make a mistake or somebody else 
is going to miss make a mistake. It will be

0:26:42.160,0:26:48.880
frustrating and it will make you want to scream, 
swear, cry, all of these things. Absolutely valid.

0:26:48.880,0:26:55.360
Do not let that be your excuse not to do 
it. Do not let that be your motivation for

0:26:55.360,0:27:00.000
doing it because it is difficult and it but 
everybody in this room has done difficult

0:27:00.000,0:27:05.040
stuff already. That's why we're here. We do 
tough stuff all the time. So let me tell you,

0:27:05.040,0:27:10.320
you can do it and there are people in this room 
that will help you and there are experts that

0:27:10.320,0:27:17.840
you can ask questions and so like seriously we 
will figure it out. Now that's the pep talk.

0:27:19.920,0:27:26.160
Yes. Thank you. So now if you use this piece of 
paper, what I did was I called seven counties

0:27:26.160,0:27:30.800
and I said, "Look, people are intimidated 
because they don't even know what to ask

0:27:30.800,0:27:38.400
for. They don't know what word to use or what 
what they don't even know where to start. Follow

0:27:38.400,0:27:45.520
this sheet. It's not perfect. It worked. But 
Melissa, I got it. We got We got there. Yes.

0:27:45.520,0:27:49.920
Was it two days ago? I got my letter. I'm on 
the wait list. So, did we get did you get this

0:27:49.920,0:27:56.240
from seven counties? This the information 
she made this girl. And to be fair though,

0:27:56.240,0:28:01.440
Seven Counties makes mistakes. They do. They do. 
And so do we. And and everything else. And so does

0:28:01.440,0:28:08.400
the person at the DCBS office in Lraange. Talk 
to Holly at seven counties. So So on this sheet,

0:28:08.400,0:28:12.080
you will see it has the phone number that you 
should call. Hold on. Now I got to actually

0:28:12.080,0:28:18.560
put my glasses on. Um, you may or may not get 
a person that answers this phone number, but do

0:28:18.560,0:28:23.760
not be discouraged. Leave a message. If you don't 
get a call back from them in two days, call them

0:28:23.760,0:28:30.080
again. On your answering machine or on the message 
or the person, you say, "I need to speak to the

0:28:30.080,0:28:36.400
family support on call staff." That's what you 
ask for. The family support on call staff is one

0:28:36.400,0:28:43.360
of three people. You got one. I got a different 
one. Holly, Gail, and someone else. uh she it's

0:28:43.360,0:28:50.560
a twocllable I don't know it's a two-cllable name 
but it's rotating and it's literally their job

0:28:50.560,0:28:55.360
that's why it rotates so every third day you could 
have a different person but that's literally their

0:28:55.360,0:29:02.720
job to answer those calls and to help people 
okay so don't get discouraged tell them you're

0:29:02.720,0:29:06.640
trying to apply for Medicaid for your child with 
a disability don't worry if your family has more

0:29:06.640,0:29:13.840
income than the limits of Medicaid this is your 
small human. They don't have an income. Can I

0:29:13.840,0:29:20.480
add? Yes. You just have to apply for Medicaid. 
You do not have to be accepted for Medicaid to

0:29:20.480,0:29:25.120
go through the waiver process. That's a really 
good point. You do not say that again. You don't

0:29:25.120,0:29:32.800
you don't have to be accepted on Medicaid. You 
just have to apply. So, she saw that I applied

0:29:32.800,0:29:37.040
and then she's like, "That's all we need." 
And then you can go through with the waiver.

0:29:37.680,0:29:42.800
So, they may they may send you through some steps. 
I wrote this down on here. I don't need to read

0:29:42.800,0:29:50.320
the whole thing to you because you can go home and 
read it later, but um they can offer help. If they

0:29:50.320,0:29:55.840
give you information that's too confusing, 
you can say, "I'm overwhelmed by this. I

0:29:55.840,0:30:02.240
um I don't understand. I'm getting 15 different 
messages. Could you please just do this for me?"

0:30:02.240,0:30:08.480
They can do this. They can do this for you. you 
will have to sign a confidential, you know, like

0:30:08.480,0:30:13.680
there will be an exchange of a confidentiality 
agreement. You'll feel like you're giving them a

0:30:13.680,0:30:19.200
lot of stuff, but they can do it. They can go on 
the computer and do it for you. Um, I would tell

0:30:19.200,0:30:24.240
you to be very nice to this person because they 
are about to help you and you want them to help

0:30:24.240,0:30:28.240
you. What was your question? I'm sorry. You know, 
if they have anybody that speaks Spanish? Yes,

0:30:28.240,0:30:33.200
they do. They have a translation service. 
You just have to make sure you ask for it.

0:30:34.000,0:30:40.240
That is a very good question. I should update 
that on my form. The the third person on that

0:30:40.240,0:30:45.200
team is Julie Daringer. She's very fluent in 
Spanish in Spanish. Um and then they have an

0:30:45.200,0:30:50.080
interpreter line that they can call 
as well if it's another language. And

0:30:50.080,0:30:55.600
um I think they have like over 105 languages 
that the translation service will utilize.

0:30:56.560,0:31:06.320
Um, so I would just encourage you to be diligent, 
but leave a message and just be honest like about

0:31:06.320,0:31:11.760
I am I'm very I'm I'm running into all these 
questions. I'm frustrated. I don't know where

0:31:11.760,0:31:17.040
to start. And just explain exactly your position, 
how you're feeling about it. And my thought is

0:31:17.040,0:31:23.680
at least it worked for us. Um, and I felt like 
quicker communication was through email with them.

0:31:23.680,0:31:28.080
If you have any questions, just shoot her an 
email. She literally would write me right back.

0:31:28.080,0:31:34.640
So, yeah. I mean, we're not here to tell you all 
what to do, but piggybacking off of her speech and

0:31:34.640,0:31:43.760
also I'm a former Seven Counties employee. Um, the 
assistance that they can provide you is exactly as

0:31:43.760,0:31:49.280
she's describing. They can do it for you. And 
so, Kale here, she's like, "Well, what are you

0:31:49.280,0:31:53.600
going to do if they tell you to um help? I think 
you need assistance applying. And I said, I'm

0:31:53.600,0:31:57.120
going to tell them to call Sevens counties. Well, 
isn't don't you need to do better customer service

0:31:57.120,0:32:06.400
than that? Sorry, I'm picking on you. And uh the 
reality is they do applications every single day.

0:32:06.400,0:32:12.240
It it is their job. Every single day they're doing 
applications. They are the CHC for this area, the

0:32:12.240,0:32:21.360
center um our entire for all these seven counties. 
and they are getting state dollars to do this. And

0:32:21.360,0:32:26.720
so don't feel like you're inconveniencing them. 
I mean, certainly be nice. Certainly be nice,

0:32:26.720,0:32:32.000
but don't feel like you're asking them for a big 
ask because it's their job and they are paid for

0:32:32.000,0:32:39.120
it. You're not asking for a favor. And you can 
make the choice to go to the connect website

0:32:39.120,0:32:47.760
and do your own application. That's absolutely 
possible. But save yourself the headache. Oh,

0:32:47.760,0:32:52.080
save yourself the headache of trying to figure 
out how to navigate that, which I'm recommending.

0:32:52.080,0:33:00.080
And and and call and and have these ladies help 
you. Gail has been there for over 30 years. Not

0:33:00.080,0:33:05.200
me. Not this Gale. Seven times different. There 
there's a couple little tidbits I put on the back

0:33:05.200,0:33:10.720
that literally these were exact verbiage that the 
ladies gave me and said if you've already started

0:33:10.720,0:33:15.760
working with a connector or somebody else, this 
is just tidbits that they gave me. But if you

0:33:15.760,0:33:20.960
just straight up call them in the first place, 
then you don't have to worry about that. Um,

0:33:20.960,0:33:28.480
also you might want to tell them I'm I'm in Olden 
County. And um, also at the end of all of this,

0:33:28.480,0:33:32.560
if you know when you get on to the weight list 
and you get the services and everything like that,

0:33:32.560,0:33:38.240
you do not have to feel obligated to use seven 
counties at the end of this. Um, there are other

0:33:38.240,0:33:46.960
places that do the job also, but I'll tell you 
I it worked for me, but you do not they're not

0:33:46.960,0:33:52.480
you're not obligated to stay with them if you use 
if you use them to help you sign up for this. So,

0:33:52.480,0:33:57.520
do not feel obligated. And um they're actually 
obligated to tell you that you have freedom of

0:33:57.520,0:34:06.640
choice to choose a new provider. That's right. 
That's right. Um so I would encourage anyone to

0:34:06.640,0:34:12.640
like if you can come in two weeks we could talk 
about this more at our meeting um and rehash it.

0:34:12.640,0:34:19.280
I mean we sat in your kitchen and you know called 
on the phone like or like if you get to the point

0:34:19.280,0:34:24.960
where you actually have somebody calling you 
back like we can meet at the library and we can

0:34:24.960,0:34:30.960
sit there together and I I'll ask the questions. 
I mean, you have to be there with me, obviously.

0:34:30.960,0:34:38.640
I mean, I'll ask the questions, but you know, I I 
would I would just say get started. Don't let that

0:34:38.640,0:34:45.680
be the reason. And um the other thing I wanted to 
tell you and then I am done. Um is that hold on a

0:34:45.680,0:34:54.880
second. Once you get Let's see. Hold on. Make sure 
I said everything I wanted to say. Um, oh, you

0:34:54.880,0:35:00.240
might say to yourself, "The wait list is long." 
Which it is. It is long. Uh, this is really hard.

0:35:00.240,0:35:06.560
It absolutely is. But I don't actually think it's 
ever going to get easier. So, like, just sucking

0:35:06.560,0:35:11.280
it up and doing it now is what I would tell you 
to do because I don't think it's going to get

0:35:11.280,0:35:15.680
easier. I don't I don't have any reason to believe 
it will ever get easier than it is right now. When

0:35:15.680,0:35:21.360
I did this process, I felt like it I could do it 
easily now. Like, I wish I would have easily. just

0:35:21.360,0:35:26.320
say the word easily. I wish I would have had this 
when I started trying to do this like four years

0:35:26.320,0:35:34.640
ago. So, well, it worked. The other thing that I 
will say is that our current governor is a huge

0:35:34.640,0:35:44.720
supporter of our waiver services and and um if any 
of you are connected to your uh legislators for

0:35:44.720,0:35:53.120
the area making sure this is a budget year and 
and he's actually added allocations which will

0:35:53.120,0:36:00.000
help get people off of the weight list for both 
Michelle Pon and CL programs. programs as well as

0:36:00.000,0:36:07.760
the other 1915C programs, but Cong our our state 
Congress has to approve the funding of those. So,

0:36:07.760,0:36:14.800
making sure that your legislators are and 
constituents are um recognizing the importance

0:36:14.800,0:36:22.880
and making a call and and and lobbying and 
advocating in that way is just as as critical uh

0:36:22.880,0:36:28.240
in order for our program and and our individuals 
to continue to get the assistance that they need.

0:36:28.800,0:36:34.480
That was the other thing about getting 
families to band together is for those reasons,

0:36:34.480,0:36:39.200
political reasons. You know, if they're looking 
for waste, we all certainly don't want waste in

0:36:39.200,0:36:43.040
government spending, but we want to make sure 
that the people looking for it understand that

0:36:43.040,0:36:48.640
we're not the waste, that it's not in services 
for people with intellectual disabilities, that,

0:36:48.640,0:36:53.440
you know, we're we're kind of hanging on by a 
thread as it is. Um, and those parents speak

0:36:53.440,0:37:01.600
much louder to politicians and those guys than we 
do. Yeah. Yeah. We have a day in March that we're

0:37:01.600,0:37:06.720
going to be going to Frankfurt, but I'm not going 
solo. I'm taking some of the individuals that we

0:37:06.720,0:37:14.080
support that have disabilities and their parents 
with us. Does anybody have any questions about

0:37:14.080,0:37:24.720
um my my motivational speech? I'm happy to help 
you. I really am. And um do not get do not get

0:37:24.720,0:37:32.960
discouraged. Get motivated. Okay, that's fine. 
Oh, now I have to give you this. Thank you. Yes,

0:37:32.960,0:37:38.000
please. And come to our meeting in two weeks and 
just talk about stuff like this. Okay. Okay. All

0:37:38.000,0:37:42.720
the time. So, I think one of the things I I know 
I keep saying this, but I can't tell y'all how

0:37:42.720,0:37:48.480
excited I am that she got up and did that because 
the thing is is I I don't know how many times

0:37:48.480,0:37:54.240
y'all have said experts. I am not an expert on 
anything. Okay. And she may be an expert, but I'm

0:37:54.240,0:38:01.680
not. Okay. I'm just want to settle that right now. 
I am doing the best I can with 42 Is it that long?

0:38:01.680,0:38:06.960
Yeah. 42 years of knowledge of working with people 
with intellectual disabilities. The problem with

0:38:06.960,0:38:12.880
somebody who's been doing it as long as me is it's 
changed so much that I can get easily confused

0:38:12.880,0:38:17.200
like I did on the Medicaid thing or the Michelle P 
changed all that. Oh, well, I didn't know because

0:38:17.200,0:38:22.000
I was working ICF by the time that happened, 
which is what she was tell. Oh, no Michelle. Oh,

0:38:22.000,0:38:28.080
okay. Now, if you asked an ICF question, I 
could answer those a lot better for you. Um,

0:38:28.080,0:38:32.400
and and then the reason, you know, why is she 
even here? Initially, we didn't have Mary. Now,

0:38:32.400,0:38:37.680
we have Mary to ask to answer these questions. 
But it really does work better when you guys

0:38:37.680,0:38:43.440
do it. I cannot describe to you how much easier 
it is because you're t and I know that you get a

0:38:43.440,0:38:48.320
different story from everybody you talk to. We 
don't mean to. We're based on what we know and

0:38:48.320,0:38:55.120
what we somebody's told us and maybe they told us 
wrong or whatever. But the good thing about having

0:38:55.120,0:39:02.560
been in this business as long as I have is I saw 
it when it was so bad, you know, just the services

0:39:02.560,0:39:08.080
were not something that I would even expose you 
to as family members. Um it it was I make our

0:39:08.080,0:39:13.040
employees look at it. I say this is what it looked 
like when I started. This is why I cried on my way

0:39:13.040,0:39:20.000
to the car, you know. And what changed all that 
was a news story that got picked up by the network

0:39:20.000,0:39:26.000
and all the families in all of the United States 
saw it and said, "Oh yeah, not my kid." And it

0:39:26.000,0:39:32.240
changed everything. Everything. Every good change 
that's ever happened in this industry has been

0:39:32.240,0:39:36.960
because of families. We aren't the special ones 
of people. Oh, you're so special for work. No, no,

0:39:36.960,0:39:43.200
no, no, no. You guys, I hate it when they do that. 
It's like, no. Um, so yeah, don't even do that.

0:39:43.200,0:39:48.800
But also, it does make you feel stupid, but you 
need to understand that that's just because it's

0:39:48.800,0:39:57.200
new. My brother has um autism. He lives in his own 
apartment, but he does require because of income

0:39:57.200,0:40:02.720
some um housing assistance. And every time they 
send me the annual thing and like this year it was

0:40:02.720,0:40:10.400
all digital. It wasn't paper. I'm old, remember? I 
like paper. And I'm like, I'm a social worker. and

0:40:10.400,0:40:15.280
do this whole day, he's going to lose his housing 
because of me. I mean, it's that intimidating. And

0:40:15.280,0:40:19.920
then I finally have to just stop and look at it 
and pick up the phone and call them and they don't

0:40:19.920,0:40:27.280
answer their phone, you know? So, I get it, but 
it just it's because you haven't done it before

0:40:27.280,0:40:33.760
and that's why it helps to have done it. Um, so 
as far as I think the question was, should you

0:40:33.760,0:40:40.800
apply? And the answer is yes. Was there anything 
else that needed to go on this list? Do you um do

0:40:40.800,0:40:46.000
you do anything with social security? So like when 
you start earning so when your child earns social

0:40:46.000,0:40:50.720
security and you have to fill out that paperwork 
every year, annual report. That one I do know.

0:40:50.720,0:40:55.600
Okay. So is there is there any way to help through 
that? I haven't started yet, but a friend of mine

0:40:55.600,0:41:02.160
keeps giving me these horror stories every time 
she goes to fill it out that um because you're

0:41:02.160,0:41:06.880
trying to spend all that money. Spend the money. 
I can't say all that cuz it's not a lot, but yeah,

0:41:06.880,0:41:15.040
I was going to say but calculate the housing and 
the food, but it's all incorporated into yours and

0:41:15.040,0:41:22.080
how to separate that and put a dollar amount 
on it and follow that process every year. Uh,

0:41:22.080,0:41:26.720
and I can just from my experience when my parents 
first passed and my brother was living with me,

0:41:26.720,0:41:31.920
what I did with that is I just said our rent was 
split in half, our food was split in half, our

0:41:31.920,0:41:37.680
cable was split in half, and so he covered half 
the cost. Now that he's on his own, um, of course,

0:41:37.680,0:41:42.880
all the costs are his. Um, I have I do have to 
there's a few things you have to be careful about.

0:41:42.880,0:41:49.760
Like I'm not I don't necessarily tell them if 
I give him a little extra cash for Xbox bucks

0:41:49.760,0:41:54.160
or whatever, you know, because they'll ask you 
if you give him money, if he's getting any extra

0:41:54.160,0:42:00.640
money. No, no, no. I'm not going to do that. But 
it really isn't very hard, particularly for our

0:42:00.640,0:42:07.280
um guys, people with back injuries, um those kinds 
of illnesses, it gets into that whole proof of

0:42:07.280,0:42:12.320
continued disability and it becomes really hard. 
One thing that is happening though and I know it's

0:42:12.320,0:42:17.760
happening with housing and possibly with social 
security is the proof of citizenship is becoming

0:42:17.760,0:42:24.480
an issue and that was an issue with me um when you 
inherit a sibling mom and dad you know they didn't

0:42:24.480,0:42:28.000
leave the birth certificate and all that stuff 
like they should have. So that became an issue of

0:42:28.000,0:42:34.320
me going no he's a citizen I was there when he's 
born. Um but for the most part it's a one-page

0:42:34.320,0:42:39.920
thing. It's the annual report. There's two annual 
reports. one for guardianship and there's one for

0:42:39.920,0:42:47.040
social security. And always, always save the 
previous years because the biggest thing that's

0:42:47.040,0:42:54.160
going to flag it is if last year you spent 3,000 
on housing and this year you say you spent 5,000

0:42:54.160,0:42:59.920
on housing. Does that make sense? So, whatever 
you come up with your formula, keep it consistent.

0:43:00.640,0:43:08.240
Um well I think that her her concern was that 
um her daughter first only qualified for like

0:43:08.240,0:43:15.920
a minimum amount and then they increased that. So 
she has to show how the expenditure has increased

0:43:15.920,0:43:23.040
when it really hasn't but like it could I don't 
know well and you can put that in trust funds.

0:43:23.040,0:43:28.800
There's some numbers in these packets um or down 
syndrome of Louisville has a great website. We're

0:43:28.800,0:43:34.880
working on ours, but they've got some attorneys 
and stuff, an ABLE account. Yeah, there's several

0:43:34.880,0:43:39.760
accounts that that money can go into where it 
won't count against their social security. Um,

0:43:39.760,0:43:45.200
and we're also going to have a person in March 
come to our workshop that's going to talk about

0:43:45.200,0:43:53.440
uh No, it's March. February is the 
resource fair. March. Yes. Don't don't

0:43:53.440,0:43:56.640
at the resource fair, too. Yes. So we are going 
to simply come and talk about all the financials

0:43:56.640,0:44:02.640
and those kind of things at our March meeting. So 
no that is Yes. So that is they are also having um

0:44:02.640,0:44:10.480
do you follow feet? No. Okay. So um I would tell 
everybody if you're not already that's you know

0:44:10.480,0:44:18.960
feat. Thank you. Um to get on get their um sign 
up for their like monthly newsletter right now.

0:44:18.960,0:44:28.880
Um, if you got this, I think maybe after this 
after I could take um email addresses and send

0:44:28.880,0:44:34.880
out the stuff about feet, but um they are in the 
midst of a threepart workshop on literally all of

0:44:34.880,0:44:40.720
that. It's a virtual workshop right now. I watched 
part one yesterday. Two and three are still coming

0:44:40.720,0:44:49.120
up and you can sign up for that online and it's 
like a Zoom um a Zoom meeting or whatever. And

0:44:49.120,0:44:54.240
it has some stuff like that. It didn't have all of 
that, but it had some of the things about what you

0:44:54.240,0:44:58.000
can put your money into, what people who are on 
social security can put their money in together.

0:44:58.000,0:45:03.920
Yeah. You can do pre-barial, you can do um but 
when you're spending the social security money,

0:45:03.920,0:45:09.200
you have to account for every penny of the 
social security money. Y yes, that is true.

0:45:09.200,0:45:12.880
Which is the same for the annual guardianship 
report as well. You'll have to account for all

0:45:12.880,0:45:17.040
that. Once you become a guardian, you're going to 
get something. Now, I can tell you the difference

0:45:17.040,0:45:23.600
between ODM County guardianship and and Jefferson 
County guardianship is night and day. You don't

0:45:23.600,0:45:29.200
turn in your report on time in Jefferson County, 
your kid gets a state guardian. In ODM County,

0:45:29.200,0:45:35.440
the clerk will call me and hey, this lady hadn't 
turned in anything in seven years. Is she kind

0:45:35.440,0:45:43.200
of old or And I'm like, oh my gosh. And yeah, so 
I've I'm a guardian. I've been in the individual

0:45:43.200,0:45:48.480
I'm a guardian for had lived in Olden County and 
moved to Jefferson County. So, I've experienced

0:45:48.480,0:45:58.160
both systems and she's not wrong. Uh Olden County 
guardianship court is very lovely. Very, very,

0:45:58.160,0:46:04.080
very lovely. Uh Jefferson County uh is not bad. 
They don't necessarily just kick you off. you

0:46:04.080,0:46:10.080
do get a warning, but but it's a warning that 
you need to reply to very quickly because they

0:46:10.080,0:46:15.200
will tell you in that warning if that you don't 
get your stuff done by the date and this letter

0:46:15.200,0:46:21.520
then yes it it does defer to state guardianship 
and keep in mind every single parent I got a call

0:46:21.520,0:46:26.720
today oh my gosh I got this letter it's going 
before the judge on this date which means they

0:46:26.720,0:46:33.200
didn't turn in their annual report and there's a 
court date in in ODM county it's like okay I'll

0:46:33.200,0:46:36.960
call and tell them it's coming. In Jefferson 
County, I'd be like, "Okay, we need I need you

0:46:36.960,0:46:41.120
to take this to the courthouse. I need So, it 
is very different depending on where you are,

0:46:41.120,0:46:48.320
but it's the same thing in terms of showing where 
all the money went basically." And some of this

0:46:48.320,0:46:53.120
stuff is a pain, but you have to remember the 
flip side. There unfortunately are people out

0:46:53.120,0:47:01.280
there who will get guardianship of someone to 
get their money. That little $800, $900 a month,

0:47:01.280,0:47:07.360
they'll do that. So this is a way of ensuring 
that no one is doing that that their needs are

0:47:07.360,0:47:15.200
taken care of and that that money is being 
spent or put away for them for the future.

0:47:15.200,0:47:22.400
Is that all? Um I think so. So guardianship I 
don't really understand the difference between

0:47:22.400,0:47:27.200
guardianship and whatever. Is there something 
else out there? I mean I'm her mother until

0:47:27.200,0:47:32.960
she turns 18 to turn 18 and then you're still her 
mother but not her legal appointed. So then she's

0:47:32.960,0:47:41.120
a legal adult. She can sign. Oh god. Yeah, 
that's scary. Yeah. And so talk a little bit

0:47:41.120,0:47:45.600
about guardianship. Um and this and and Mary 
and I haven't talked about this, so she may

0:47:45.600,0:47:52.400
have a totally different feeling than I do. Um but 
there are attorneys who will try to get you to get

0:47:52.400,0:47:59.920
um power of attorney. If this my brother has power 
of attorney if something happens medically is the

0:47:59.920,0:48:04.240
only thing where he says my sister can because he 
can tell you where he wants to live. He can tell

0:48:04.240,0:48:09.120
you what he wants to eat and believe me he does. 
He can tell you all of that. But medical he and I

0:48:09.120,0:48:12.640
talked about it. He's like yeah I never understand 
what they're saying. So I have power of attorney.

0:48:12.640,0:48:19.520
I wouldn't get guardianship of him. Okay. But 
the people we support have no understanding

0:48:19.520,0:48:25.840
of medical care meals. Now, she's supporting a 
different population. The folks she's supporting,

0:48:25.840,0:48:31.920
you can't understand. I got the nine. I got people 
who are their own guardians. I got people who have

0:48:31.920,0:48:39.280
limited guardians. I've got people who have just 
uh authorized representatives for the fidiciary.

0:48:39.280,0:48:47.600
I've got conservators. I've got I've got uh 
legal attorneys who are paid to stand in and make

0:48:47.600,0:48:56.080
decisions. Yeah, that's fine. But it needs to be 
individualized. But if your child does seriously

0:48:56.080,0:49:02.880
is um significantly enough in in um disabled in 
terms of being able to understand things and a

0:49:02.880,0:49:08.320
lawyer says, "Well, just do power of attorney." 
What you're saying is that you right now as as you

0:49:08.320,0:49:14.160
sign this, Susie, you understand this document. 
If Susie doesn't understand the document now, she

0:49:14.160,0:49:19.040
shouldn't be signing the document. Does that make 
sense? And attorneys will do that because they're

0:49:19.040,0:49:25.440
protecting you. That way, basically, you're not 
liable if something happened. But unfortunately,

0:49:25.440,0:49:33.120
nobody is. If somebody needs a legal guardian, I 
highly recommend that you look at that in terms

0:49:33.120,0:49:37.440
of the need. It does go both ways. There's 
also people who will say, "Oh, absolutely.

0:49:37.440,0:49:40.720
You should always get guardianship because they 
have a disability." But just because they have a

0:49:40.720,0:49:45.520
disability doesn't mean they can't be like her 
brother and make their own decisions. You've

0:49:45.520,0:49:55.600
got it. they want to vote, right? It is an option. 
They will ask you if you want to um you can retain

0:49:55.600,0:50:01.120
some of your rights. So just you have to make sure 
that it's in the petition. Um inalienable rights

0:50:01.120,0:50:07.440
kind of thing. And um so basically what the judge 
does is look we have people that we support even

0:50:07.440,0:50:12.640
at our level of care and they're there because 
of physical their physical needs have gotten so

0:50:12.640,0:50:17.680
bad that unfortunately they can't be supported 
in the community so they're over with us but

0:50:17.680,0:50:24.080
intellectually they do understand voting and they 
have kept their right to vote. Those who the judge

0:50:24.080,0:50:28.400
felt that they didn't at the time of adjudication 
said no we're not going to allow the right to vote

0:50:28.400,0:50:35.200
and that's to keep from being taken advantage 
of. So, but yeah, it just depends. I do have a

0:50:35.200,0:50:41.200
question along the lines with guardianship. If you 
go with the full guardianship and then find later

0:50:41.200,0:50:46.080
on that as the years have passed, they have become 
a little more independent because it is it's not

0:50:46.080,0:50:51.680
all or nothing forever. No, you can go back in. 
Yeah, you can go. And I think that's exciting.

0:50:51.680,0:50:56.000
The best story I can imagine as a kid walking 
up to mom and going, you know, I really kind

0:50:56.000,0:51:01.680
of think I'd like to take control over this part. 
I I want to choose where I live on my own and mom

0:51:01.680,0:51:10.080
going to court and saying letter. How long does 
the guardianship process usually take? Depends

0:51:10.080,0:51:13.840
on what county you're in. What was the question? 
What was how long does guardianship process? Well,

0:51:13.840,0:51:20.000
it'll depend on where they live. So, if they 
continue to live here after they turn 18,

0:51:20.000,0:51:25.280
then yes. But if they were to get an apartment and 
choose to get an apartment in Jefferson County,

0:51:25.280,0:51:29.520
then even though like you're living in Oldm 
County and they're living in Jefferson County,

0:51:29.520,0:51:35.280
then the guardianship hearing is in Jefferson 
County. It's where that person resides. So if they

0:51:35.280,0:51:42.240
choose at that age or you know or any any point, 
so maybe at 18 they're still living at home with

0:51:42.240,0:51:51.440
you, but at 25 they relocate to Jefferson County. 
Then at 25 that guardianship case moves from Oldm

0:51:51.440,0:52:01.280
County to Jefferson County and it should move 
anytime you or or vice versa. My daughter's 17

0:52:01.280,0:52:06.960
getting ready at 18 she'll become our own legal 
guardian. I always say plan for 6 months for

0:52:06.960,0:52:14.880
guardianship. Start the process at six months. 
I I just did um guardianship in Olden County and

0:52:14.880,0:52:22.560
it took um from the day I signed the paperwork 
and submitted it was in September and it was

0:52:22.560,0:52:28.560
um our court case was at the end of November. So 
it moved very quickly and you can do it before

0:52:28.560,0:52:36.480
the child is 18. Um it happened to be she was 
17 and a half. So I started it then and I found

0:52:36.480,0:52:42.720
that to be very smooth and relaxing because you 
don't want to be scrambling after the fact. So

0:52:42.720,0:52:49.920
go ahead and start early and be and it is a very 
lovely experience in Old County. I found it to be

0:52:49.920,0:52:55.360
um just go ahead and do that. It just took a 
couple months. Who did you use? Did did you use

0:52:55.360,0:53:01.840
tape guns? You can go file it yourself. You don't 
have to have it. I did it I did it myself. Um,

0:53:01.840,0:53:05.680
I feel like we have another session that 
we're doing on the guardianship or I need

0:53:05.680,0:53:11.680
to publish I have I um I made like a checklist 
and I haven't finished it yet because actually

0:53:11.680,0:53:15.920
this just went into effect. But um you 
can do it yourself. You don't need to

0:53:15.920,0:53:22.400
have an attorney unless you feel like you 
would like to have one or you have a case

0:53:22.400,0:53:30.400
um that was that is questionable like it's in in 
our case it was very clear what the answer was

0:53:30.400,0:53:36.000
going to be. But if there is a debate about maybe 
your child can do this and this but not this,

0:53:36.000,0:53:42.000
then you may want to have an attorney, but you 
don't have to. Um, what's the the comment the

0:53:42.000,0:53:48.320
council? Who's the Kelsey? Kelsey for the council 
for um council for developmental. It's on our

0:53:48.320,0:53:54.560
list. The council for developmental disabilities. 
The council that number is in your folder. The

0:53:54.560,0:54:00.880
council for developmental disabilities. the um 
they've got some great Kelsey literally helped

0:54:00.880,0:54:08.160
me fill out the paperwork and then I turned 
it in and my goal would be maybe in like a

0:54:08.160,0:54:13.680
few weeks I'll have it updated so that I could 
like share how it went. I'm not going to be able

0:54:13.680,0:54:20.160
to do what Kelsey did. She was great. I will tell 
you to go talk to her and have her help you. But

0:54:20.160,0:54:31.440
um it was yeah the application is available 
online. This is a state document. Um I'm not an

0:54:31.440,0:54:37.280
expert and I filled it out myself. I didn't have 
legal assistance when I filed for guardianship.

0:54:37.280,0:54:42.800
Um, and another thing that I would encourage you 
while we're on the topic to be thinking about is

0:54:42.800,0:54:48.720
if you are considering filing for a guardianship 
that in the same process, you begin to think about

0:54:48.720,0:54:54.720
who the standby guardian will be. So, in the 
event that like maybe you're both in the car

0:54:54.720,0:55:01.200
accident together and you can now no longer make 
the decision um for your loved one or whoever

0:55:01.200,0:55:07.520
your guardian for. Who then is next in line if 
something happens to you? You can do that same

0:55:07.520,0:55:12.480
paperwork at the same time or you can just file 
for guardianship and go and file for a standby at

0:55:12.480,0:55:25.360
a later date. It's just different forms. Sorry. 
Um I know you were talking about you know when

0:55:25.360,0:55:36.160
children are um like how do you know if they would 
qualify for for a lot of these services? like I've

0:55:36.160,0:55:43.920
um known a little bit about the Michelle P waiver, 
but I've always thought well I don't know if you

0:55:43.920,0:55:53.760
know my child's disabilities are severe enough. Um 
so who's who's going to tell me what his abilities

0:55:53.760,0:56:01.680
are going to be? So both the Michelle P and the 
SCO. So actually all 1915 C waivers regardless.

0:56:01.680,0:56:10.320
So there's seven 1915C waivers in the state of 
Kentucky, right? So uh so there's two brain injury

0:56:10.320,0:56:17.840
waivers. There's a brain acquired brain injury and 
acquired brain injury long-term. Uh and then we

0:56:17.840,0:56:28.240
have our um Michelle P waiver and our SCL waiver. 
There's also it's called model two. Model two is

0:56:28.240,0:56:35.840
um medically fragile. often they need nursing 
level care assistance, tra things like that.

0:56:35.840,0:56:45.600
Uh and then the sixth waiver is called so the the 
federal government calls our programs 1915C home

0:56:45.600,0:56:54.560
and community based waivers. That's our overall 
umbrella. And then they say to at each of the 50

0:56:54.560,0:57:01.200
states, they say, "Okay, state of Kentucky, state 
of Indiana, so on and so forth. We will give you

0:57:01.200,0:57:08.240
some federal dollars for these programs if you 
adhere to our criteria. What you do in your state

0:57:08.240,0:57:15.200
with these federal dollars is up to you. Here in 
Kentucky, they've they've split that seven ways.

0:57:15.200,0:57:20.720
Um, now the federal government does not give us 
100% of that funding, which is why I say lobby,

0:57:20.720,0:57:26.880
lobby, lobby, advocate with your legislators. So, 
the last statistic that I heard is the federal

0:57:26.880,0:57:34.720
government is is covering 46%. Now, that's 
all really up in the air because of this big

0:57:34.720,0:57:41.040
beautiful bill and all of that kind of thing. The 
rest of that funding is coming from state taxpayer

0:57:41.040,0:57:47.920
dollars. So you got your two brain injury waivers, 
your um SCL waiver, your Michelle P waiver,

0:57:47.920,0:57:55.520
your model 2 waiver. Number six, not to be 
confused with this overall umbrella of HCB is

0:57:55.520,0:58:02.080
also a small waiver called HCB. So we've got the 
overall umbrella, the title of these programs is

0:58:02.080,0:58:06.880
home and community based waiverss. And then there 
is a waiver in Kentucky that somebody decided to

0:58:06.880,0:58:14.000
call HCB. Oh no. And then the seventh waiver 
is a waiver that's just deploying this year

0:58:14.000,0:58:18.880
and it's it's called the child waiver. Um that's 
what they're calling it. They're calling it the

0:58:18.880,0:58:23.680
child waiver and it stands for something that I 
can't remember because those regulations are still

0:58:23.680,0:58:28.480
pending. But each one of those seven waivers here 
in the state of Kentucky have their own set of

0:58:28.480,0:58:36.720
rules and regulations and the criteria to qualify 
varies from waiver to waiver. And obviously,

0:58:36.720,0:58:41.040
you know, two of those are brain injury waiverss 
that computes, right? You have to have a brain

0:58:41.040,0:58:47.280
injury. There's some other criteria, rancho scores 
and things like that. Um, but specifically for

0:58:47.280,0:58:54.320
Michelle P and SCL, one of the overarching 
requirements for for most of that waiver

0:58:54.320,0:59:03.120
is it has to be a developmental or intellectual 
disability IQ below 70. If you're a 71 or a 72,

0:59:03.120,0:59:08.080
often sometimes it depends on the adaptive scores. 
So you're going to know whether you qualify for

0:59:08.080,0:59:15.200
Michelle P orCL with a psychological evaluation. 
Psychological evaluation is a requirement for the

0:59:15.200,0:59:19.760
application for the waiver. It's when you call 
seven counties, it's one of the documents they're

0:59:19.760,0:59:26.800
going to ask you for. So let's say somebody 
graduate, your child graduates from school,

0:59:26.800,0:59:31.680
you still don't have the waiver. Maybe you needed 
the kick in the pants and you haven't gotten it.

0:59:31.680,0:59:38.400
So, you still haven't applied. You're still not on 
the wait list and now they're 25, 30 and needing a

0:59:38.400,0:59:45.120
higher level of assistance. Uh, really important. 
Some of this sometime a lot of times the schools

0:59:45.120,0:59:50.080
do testing and evaluations here internally and you 
can use some of that documentation. But if you're

0:59:50.080,0:59:55.200
already out of school and the people who used 
to teach here or you knew here had connections

0:59:55.200,1:00:02.320
with are now no longer here, it can be a little 
difficult getting that old documentation. So,

1:00:02.320,1:00:10.960
um, recordkeeping is your best friend. Oh my 
god. And and holding on to that because it h

1:00:10.960,1:00:18.080
you have to be able to prove that the age of 
onset was prior to the age of 21. That's just

1:00:18.080,1:00:25.280
went through this and you can actually request an 
evaluation through Ozam County Schools and that's

1:00:25.280,1:00:32.080
what I did so that I could bypass psychologists 
and weight lists and all that craziness and

1:00:32.080,1:00:40.880
so they took my daughter's IQ score and that's 
what made her eligible for the Michelle P. So,

1:00:40.880,1:00:46.320
um, and that is one thing and I'm I'm not sure 
we talked about this last time that sometimes the

1:00:46.320,1:00:52.480
schools are hesitant and I there's a reason I know 
to put IQ scores and and they'll use a different

1:00:52.480,1:01:00.800
terminology. You need an IQ score and you need 
that IQ score before 21 because they may have had

1:01:00.800,1:01:08.080
I mean we've had people with you know I know they 
could have had special education their entire time

1:01:08.080,1:01:13.680
in school but it doesn't have an IQ score on their 
test then you have no proof that they had the

1:01:13.680,1:01:20.240
disability before the age of 21 with Down syndrome 
severely um disabled. It was very obvious,

1:01:20.240,1:01:25.040
you know, talking to mom from birth, blah, blah, 
blah. But they didn't go get the test until they

1:01:25.040,1:01:30.400
were over 21. And I'm like, you know, in this 
case, I fought it basically because there was no

1:01:30.400,1:01:35.120
brain injury. Nothing happened cognitively. They 
were born with Down syndrome, which is, you know,

1:01:35.120,1:01:40.880
this is, so I had to fight it. Um, I will tell you 
the IQ score does matter. Terry, my brother's IQ

1:01:40.880,1:01:46.880
is 74. He's not eligible for any services in 
Kentucky. Yeah. Um, so that's what they told

1:01:46.880,1:01:56.640
me. That's just the reality of it. they they won't 
they don't budge on that IQ of 70. So what I what

1:01:56.640,1:02:03.440
I would encourage is if you do get that IQ score 
um that you you make sure and it's 70 that you or

1:02:03.440,1:02:09.280
71 that you ensure that has adaptive scores as 
well cuz they will take those adaptive scores

1:02:09.280,1:02:16.640
into consideration if you're right on the line. 
Um but they're pretty strict about that 70. So,

1:02:16.640,1:02:21.520
there are a few other resources in the state of 
Kentucky. If you're not eligible for a waiver,

1:02:21.520,1:02:26.880
they are harder to get because the pool of money 
is smaller, but that the heartup supported living

1:02:26.880,1:02:34.800
grant is an option for one-time occurrence or 
ongoing. Um, and then if it is a brain injury,

1:02:34.800,1:02:41.200
there is a state brain injury trust fund that 
has dollars available as well. Yeah. And it's

1:02:41.200,1:02:48.320
it's interesting um how they do that. The acquired 
brain injury is if the brain injury happens at 21,

1:02:48.320,1:02:54.560
you know, after. But I've had families call and 
their child was in a car wreck at 8. That is

1:02:54.560,1:03:01.920
considered an intellectual disability because 
it happened prior to 21. Um, so, you know,

1:03:01.920,1:03:06.720
bottom line is it's all chasing the mighty dollar. 
I mean, that's what you're doing is you're trying

1:03:06.720,1:03:15.200
to figure out what cards to play in what order 
to get the pool of money. you don't really care,

1:03:15.200,1:03:19.440
you know, because I mean a lot of times families 
are, I don't want them to be labeled. I don't You

1:03:19.440,1:03:26.640
want money. Okay. So, whatever card you need to 
play to get that money, let's let's play it. Um,

1:03:26.640,1:03:33.760
don't feel bad about it. Yeah. The the reality is 
is unfortunately we don't live forever, right? And

1:03:33.760,1:03:41.920
we we need to be planning for succession long 
after we're gone because we want that. We want

1:03:41.920,1:03:47.040
them to be well taken care of now. We want them 
to be well taken care of down the road. Uh the

1:03:47.040,1:03:52.240
biggest difference between your Michelle P waiver 
and your SCCL waiver is that Michelle P does not

1:03:52.240,1:03:57.840
contain residential. So if you're thinking at 
some that they're never going to be able to live

1:03:57.840,1:04:03.680
independently, then you absolutely want to make 
sure you get on your Michelle P andCL weight list.

1:04:03.680,1:04:08.160
Now, years ago, when Gail and I first started 
in the field, we had to do paper applications,

1:04:08.160,1:04:13.440
and you had to do separate paper applications for 
every single one of these waivers. Now, one of the

1:04:13.440,1:04:19.040
beautiful parts of Connect, that's this terrible 
system that's really hard to navigate, is that

1:04:19.040,1:04:26.640
when you apply once, you're applying for anything 
you're eligible for. So, if you are eligible for

1:04:26.640,1:04:31.040
the wait list for Michelle P, this very likely 
that they're also putting you on the wait list for

1:04:31.040,1:04:37.040
the SCCl waiver at the same time. So, you know, 
I mentioned that there are seven 1915 C waivers.

1:04:37.040,1:04:41.040
Every single one of them has a wait list except 
for the child waiver. And the child waiver doesn't

1:04:41.040,1:04:48.560
have a wait list yet because it literally is just 
now getting started. How do we get on the number

1:04:48.560,1:04:57.600
one? The the child the child waiver is I don't 
the name is not very descriptive of the of the

1:04:57.600,1:05:09.840
waiver itself. Um the child waiver, the child has 
to be impatient hospitalized in order to qualify.

1:05:09.840,1:05:17.040
So let's go through your folder real quick just to 
So on the left side there is this wonderful thing

1:05:17.040,1:05:23.280
from the state of Kentucky and it's probably 
been changed since then because at the time

1:05:23.280,1:05:29.760
there was ABI long-term care. Michelle. Yeah. 
See, I think there's been some changes already,

1:05:29.760,1:05:35.120
but this just you can see how many waivers there 
are. It's it's a little pamphlet that looks like

1:05:35.120,1:05:40.400
this on your left side. Yeah. They're still 
trying to update all of their media to contain

1:05:40.400,1:05:48.640
that child waiver. After that is this and it's 
got a little card with a crisis line on it. Um,

1:05:48.640,1:05:55.520
this is seven counties. Just so you understand, 
this little card is not really for you. This is

1:05:55.520,1:05:59.600
for you to keep in case you ever have somebody 
with a mental health emergency. I just think

1:05:59.600,1:06:04.320
it's good. It's a social work thing for you to 
have this number um in case you run into somebody

1:06:04.320,1:06:11.840
who's needing immediate mental health. Um somebody 
who's um seven counties because they are the CHC

1:06:11.840,1:06:19.200
um for our area. They also receive dollars for the 
state for our region's crisis team. So they run

1:06:19.200,1:06:24.720
a crisis stabilization unit. And I've had people 
call this though and say, you know, we have this

1:06:24.720,1:06:30.000
individual with an intellectual disability. That's 
really not. But these guys do a great job. People

1:06:30.000,1:06:34.880
say they want about seven counties. I've had to 
contact the crisis line number to help people and

1:06:34.880,1:06:39.680
they are on it. I mean, they are really, really 
good with people in crisis. So, just keep that

1:06:39.680,1:06:44.800
card in case you need it. Then this talks about 
what she was saying, which is basically you have

1:06:44.800,1:06:51.440
two choices. You have the paper behind that which 
says how to apply for services and it looks a lot

1:06:51.440,1:06:59.840
like Greek to me. But you can do this. Like Mary 
said, you can choose to do this. I would not,

1:06:59.840,1:07:05.440
but you know, that's me. Or you can go to seven 
counties and have some nice social worker help

1:07:05.440,1:07:11.440
you do this. Technically, any case management 
agency in the state of Kentucky can complete an

1:07:11.440,1:07:19.200
application. the case managers are not reimbursed 
for their time and doing an application. So,

1:07:19.200,1:07:24.240
if you know or aware of a case manager that out 
of the kindness of their heart is willing to help

1:07:24.240,1:07:31.360
you apply, that's also a third possibility. Um, 
but Seven Counties is reimbursed for their time

1:07:31.360,1:07:39.440
to do that. I started my career, they used to call 
that the seven counties type organizations, MHMR.

1:07:39.440,1:07:44.400
I mean, it had all kinds of names, but anyway, I 
started my professional career, I guess, as a case

1:07:44.400,1:07:51.120
manager um in Texas for an authority. They called 
it the mental health authority and you know, they

1:07:51.120,1:07:56.960
they do stay on top of all the requirements of the 
paperwork and all that. Um the next page is the

1:07:56.960,1:08:03.520
establishing guardianship. We talked about that. 
Again, you're going to um ask for guardianship

1:08:03.520,1:08:08.720
in the county that the person lives in, not you. 
Parents get that confused a lot. We have people

1:08:08.720,1:08:12.080
who live at the lodge and their parents don't 
want to change their guardianship to Odin County

1:08:12.080,1:08:18.000
because mom and dad still live wherever, but 
technically it should go where the person lives.

1:08:18.000,1:08:24.480
Uh, one quick thing about standby guardians, just 
to make sure you understand, I get this a lot.

1:08:24.480,1:08:29.520
uh mom was the guardian, sister's the standby 
guardian, mom passes away, sister doesn't

1:08:29.520,1:08:34.240
notify the court because she thinks, well, 
I'm the guardian now. That is not the case.

1:08:34.240,1:08:39.040
The standby guardian does not automatically become 
the guardian. They have to go to court. The only

1:08:39.040,1:08:42.320
way that happens is if there's co-guardians, and 
that's a whole another thing you really don't want

1:08:42.320,1:08:50.640
to get into um unless you're husband and wife. But 
anyway, that's guardianship. Financial help is in

1:08:50.640,1:08:58.640
that stack. And then there's this thing which has 
probably been updated, but this has every kind of

1:08:58.640,1:09:04.160
waiver, every kind of everything in the state 
of Kentucky. If you're looking for services, it

1:09:04.160,1:09:10.160
should be in here in terms of a number. Now, you 
know, the reality is when you start trying to call

1:09:10.160,1:09:16.480
government agencies, the numbers change. And I get 
all that. Um, but just keep trying. In the end,

1:09:16.480,1:09:22.560
you're going to find somebody. And the internet 
is a wonderful thing. Yes. If you're everybody

1:09:22.560,1:09:29.760
in here, yeah, is younger than me and able to 
do that. Um, so I get a lot of calls. You know,

1:09:29.760,1:09:34.880
the difference between what we get is is she's 
getting people who are coming in with a waiver.

1:09:34.880,1:09:41.280
I'm getting a lot of crisis. I get a lot of 
80-year-old mom just passed. 60-year-old daughter

1:09:41.280,1:09:48.880
doesn't know what to do with 68-year-old brother. 
And immediately I'm like, was mom the guardian?

1:09:48.880,1:09:54.320
What does that mean? Okay. So, and you know, do 
you have an email? No, I don't have an email. So,

1:09:54.320,1:10:01.040
it's it's a whole different ballgame. Um, so, 
and then the frequently asked questions is on

1:10:01.040,1:10:09.920
the right side and it talks a little bit about 
what is SCCL, who's eligible. Um, the ICF, okay,

1:10:09.920,1:10:18.400
that's different. That's what I do. The two of us 
are ICF. That is facility-based. When I started

1:10:18.400,1:10:24.160
in this business, everyone lived in a facility. 
I don't I mean, you could have an IQ of 130 and

1:10:24.160,1:10:28.560
you had a little bit of pause and you lived in a 
facility. I mean, that's just how that happened.

1:10:28.560,1:10:34.240
But remember the big expose I told y'all about? 
It used to be on Netflix. I don't know. It's still

1:10:34.240,1:10:40.240
It's I just really hesitate to have parents watch 
it, but anyway, it's called Willowbrook. It's the

1:10:40.240,1:10:50.480
um Haraldo Rivera um walked in to a facility that 
served over 5,000 people, right? And he walked in

1:10:50.480,1:10:57.200
right after they had done a lot of budget cuts. 
And this is back before we had streaming and

1:10:57.200,1:11:01.600
whatever. It was just he would worked for this 
little bitty network what got picked up by ABC,

1:11:01.600,1:11:07.360
NBC, CBS. You also have to understand, and I know 
this is really hard for y'all, but I I always ask

1:11:07.360,1:11:13.280
people, please don't judge because I I worked with 
these parents. They were told by their doctors to

1:11:13.280,1:11:18.560
place their children in these facilities 
and not come back. And parents are like,

1:11:18.560,1:11:23.200
"How could they do?" It was a different 
time. The doctor said it. The doctor said,

1:11:23.200,1:11:27.360
"It's the best thing for the child. These people 
know how to take care of them. You don't. It's

1:11:27.360,1:11:31.520
going to be horrible. Every time you come and you 
leave, your other children are going to suffer."

1:11:31.520,1:11:37.920
So the parents did it, okay? So they didn't know 
what was going on. Well, this Willowbrook expose,

1:11:37.920,1:11:44.240
which you will see if you look it up on YouTube 
or wherever, um, hit and got picked up and every

1:11:44.240,1:11:52.960
parent across the nation. So that was in 1973 or 
so. I started in the field in 1983. Texas was in

1:11:52.960,1:11:58.240
the middle of the biggest class action lawsuit 
you can imagine. My first job in this business was

1:11:58.240,1:12:04.080
in one of these state facilities. No idea. just 
wanted to pay for school, you know. Um, so yeah,

1:12:04.080,1:12:07.840
I went in. I was going to work at adolescence 
because, you know, I was 18 and thought they

1:12:07.840,1:12:14.160
were misunderstood probably because I was one. But 
anyway, um, but yeah, walked in and and I remember

1:12:14.160,1:12:21.760
thinking, "Oh my gosh, if there's anybody who 
doesn't have a voice and they didn't." So anyway,

1:12:21.760,1:12:29.040
if you want to look at that. Um, but that is 
what and so what happened was all the states,

1:12:29.040,1:12:32.320
federal government, everybody said, "Okay, 
we're not doing this anymore. We want all of

1:12:32.320,1:12:38.240
these places closed. Every last one of them. Every 
state, y'all figure out a way to do it." In Texas,

1:12:38.240,1:12:44.160
his name was Barefoot Johnson. It was a judge. And 
he was on them like I can't even describe to you.

1:12:44.160,1:12:50.400
He wanted every single We had 13 state schools in 
Texas. He wanted every single one of them closed.

1:12:50.400,1:12:57.840
They never closed them all. What happened was 
initially it was great because I was direct care

1:12:57.840,1:13:01.680
at the time and I worked in one of these group 
homes. I mean we had people that were coming

1:13:01.680,1:13:05.840
out of these schools that were teaching me how to 
cook. I mean they were like no Gail here. Let me

1:13:05.840,1:13:09.520
show you how to do this. I mean these guys were 
extremely capable. Went on to live in their own

1:13:09.520,1:13:14.240
apartments, went on to have jobs and they just 
kept getting them out and getting them out. It

1:13:14.240,1:13:21.760
was the greatest thing in the world. And then the 
people who were left in the state facilities were

1:13:21.760,1:13:28.480
people who um had hydrophalis with no this is 
before shunts. So they had the really large if

1:13:28.480,1:13:34.720
you ever seen anybody like that but um extremely 
fragile. They need a nurse with them all the time.

1:13:34.720,1:13:43.440
Um and the state's rate for caring for people 
in the community didn't cover a nurse. Like in

1:13:43.440,1:13:48.720
Kentucky, the waiver doesn't cover. Yeah. I I 
came from a different state and we closed all

1:13:48.720,1:13:53.680
of ours. So when I moved to Kentucky and they 
said we still had some, I went, "What?" Yeah.

1:13:53.680,1:14:02.960
The states that closed all of them adapted to the 
needs changing. Kentucky, Texas didn't. So yeah,

1:14:02.960,1:14:08.160
at first you could take somebody who was very 
capable and and put them in a group home and

1:14:08.160,1:14:12.320
you could have one staff and 15 people and teach 
them and they went off on their own and you had

1:14:12.320,1:14:17.360
a very low rate. But when you start trying to 
serve somebody with a TRA or somebody with a

1:14:17.360,1:14:24.240
G tube or somebody with significant seizures, um 
you're going to have to have more money. You can't

1:14:24.240,1:14:29.920
have one 18-year-old kid working in there with six 
people who are high medical need. And that's where

1:14:29.920,1:14:39.840
the gap is between what we do. I've done both. 
Um, until states provide proper funding for the

1:14:39.840,1:14:46.480
community, there will be a need for our kinds of 
facilities. Did I say that right? In other words,

1:14:46.480,1:14:53.200
do I think everybody should be able to live in the 
community? Yes, I do. Everybody. So the state of

1:14:53.200,1:15:00.560
Kentucky has obviously funding allotta allotted 
for all the allocations, but the reimbursement

1:15:00.560,1:15:06.640
rate for service varies depending on what the 
service is. Um I provide all of the community

1:15:06.640,1:15:14.880
services that Cedar Lake has. Uh and um each one 
has a a like I said a varying reimbursement rate,

1:15:14.880,1:15:20.640
but my my largest expense and the one that costs 
us the most to run is our residential program.

1:15:20.640,1:15:27.600
I have 13 properties across Oldm and Jefferson 
County. Uh a group home which is at a 1:6 ratio

1:15:27.600,1:15:35.120
and and then a staff residence which is 1:3 
ratio. Plus I I run in addition to those 13 um

1:15:35.120,1:15:41.280
a large number of apartments also in both OldM and 
Jefferson County. And those are uh in individuals

1:15:41.280,1:15:45.600
who can live independently in their own apartment 
with intermittent supports. We're still there.

1:15:45.600,1:15:51.360
We're still going in but we're not there 24 hours. 
my group home in the staff residence. I'm there 24

1:15:51.360,1:15:57.840
hours. Well, um, up until two and a half years 
ago, we hadn't had a reimbursement increase in

1:15:57.840,1:16:04.400
25 years. Well, I'm sorry. Inflation has gone up 
a whole lot faster than that. Not even a cost of

1:16:04.400,1:16:11.360
nothing. Nothing, right? Um, and so we did get a 
small increase a few years ago and and that has

1:16:11.360,1:16:18.160
made a difference, but um, it's it's still a cost 
is astronomical. And so, you know, I have 13 24/7

1:16:18.160,1:16:24.400
properties. I can't I can't af I can't financially 
sustain a nurse or a medical licensed professional

1:16:24.400,1:16:31.520
in all of those. Um so so yes are the residentials 
and this is doesn't doesn't matter whether it's

1:16:31.520,1:16:40.640
Cedar Lake or another SCCL provider in the state 
um most of us the staff on the front line doing

1:16:40.640,1:16:46.560
that direct care um are non-licensed medical 
professionals. We have training that we send them

1:16:46.560,1:16:54.240
through uh but it's non law. So anything that's 
going to require a licensed medical provider we

1:16:54.240,1:17:01.920
and that we can't sustain in the community um 
ultimately it's the agency's discretion whether

1:17:01.920,1:17:07.200
they're going to continue to try to serve that 
person or work towards a higher level of care.

1:17:07.200,1:17:16.160
And often times for many providers uh in the comp 
in the state that means nursing home or bringing

1:17:16.160,1:17:23.520
them back home and private paying in some way um 
to meet the needs of that person. Uh the reality

1:17:23.520,1:17:31.120
is as time passes uh we are aging in place much 
longer which is a fantastic thing. People are

1:17:31.120,1:17:36.080
living longer. They're we're we're healthier. 
But it also means we have a longer duration that

1:17:36.080,1:17:44.160
we're providing a level of support and things 
like people with dementia or other different

1:17:44.160,1:17:50.080
types of needs that onset it it gets increasingly 
harder to meet where meet them where they're at.

1:17:50.080,1:17:58.960
Um we do have um the nice part of having the ICF 
within the Cedar Lake family and so a lot of times

1:17:58.960,1:18:04.320
uh that's very helpful for us to have as a as an 
option for our community people. It doesn't always

1:18:04.320,1:18:10.960
work that way but about like um the families we've 
been seeing on the news that's had to move out of

1:18:10.960,1:18:17.040
state with their children. Is there no facilities 
in Kentucky that would take no autistic kids

1:18:17.040,1:18:25.120
that those those um I've met with one of those 
families? Um we've been involved in that case and

1:18:25.120,1:18:33.840
um that young man I mean some of these these 
guys the autism is so um severe in the behaviors

1:18:33.840,1:18:39.440
and their understanding of what they're doing to 
themselves and in this case it's it's a lot of um

1:18:39.440,1:18:45.840
self-injury. Um, you get somebody who's extremely 
self-injurous, who refuses to wear a helmet,

1:18:45.840,1:18:53.680
who will bust their head to bleeding immediately 
within that long. That is so there's just not

1:18:53.680,1:19:01.280
um, you know, you've got a choice. And none of the 
ICFs in Kentucky that I'm aware of take children.

1:19:01.280,1:19:11.040
Oh, I'm sorry. Um, the kid one does. Um, Harbor 
is nice. Yeah, they're way home of the innocence

1:19:11.040,1:19:14.320
does. Sorry. Home of the Sorry, I wasn't sure 
where you were going with that. Home of the

1:19:14.320,1:19:21.200
Innocence serves kids, but that's it. All the rest 
of um you know, Oakwood, Hazlewood, us all adults

1:19:21.200,1:19:28.320
only. So, um and when you have that level of 
behaviors, you're going to need a facility because

1:19:28.320,1:19:33.440
again, if you come to her and say, "So, this is 
what my son does. So, if he gets really upset,

1:19:33.440,1:19:39.120
he's going to need two or three people to hold 
him." she's going to be like, "Yeah, I can't I can

1:19:39.120,1:19:46.800
only do I I mean there within the FCL waiver and 
the waiver only there's a it's called exceptional

1:19:46.800,1:19:54.320
supports and they will enha it's enhanced funding. 
Uh it could also be used for enhanced units

1:19:54.320,1:20:01.200
because there's some unit limits on things they 
can utilize. Uh but it depends on the manpower.

1:20:01.200,1:20:08.320
Yeah. and the availability of it. And if we just 
putting things into perspective, this I'm being

1:20:08.320,1:20:13.120
so that's terrible. I'm I feel like I'm painting 
a negative picture here, but like if you think

1:20:13.120,1:20:18.720
about the fact that uh we haven't had we hadn't 
had a rate increase in 25 years, that's a direct

1:20:18.720,1:20:23.280
impact on what I'm able to pay my employees. 
And if you know what anything about what the

1:20:23.280,1:20:28.480
market's like for jobs right now, um you know, 
we want good people taking care of our folks,

1:20:28.480,1:20:34.320
right? And if we want good quality care, then we 
need to be able to pay them quality dollars. And

1:20:34.320,1:20:41.680
um so there that's a that manpower is a struggle. 
Yeah, for sure. Which brings us back to families

1:20:41.680,1:20:47.280
getting together and talking to the people who 
are allocating those dollars. You know, do they

1:20:47.280,1:20:52.080
really understand? Because I think a lot of times, 
at least I like to think that people really are

1:20:52.080,1:20:56.240
trying their best to make the best decisions 
they can with the information they're given.

1:20:56.240,1:21:01.040
So I often wonder if some of the guys who are 
doing that allocation just don't have the right

1:21:01.040,1:21:08.960
information. You know, they don't realize that my 
son who has this level of need can't be served in

1:21:08.960,1:21:14.800
the community and so I have to send him to 
Oklahoma, you know, and then what hap that

1:21:14.800,1:21:23.840
school in Oklahoma, you realize they graduate out 
at 21. So at 21 that kid's back to Kentucky for

1:21:23.840,1:21:31.120
whatever's out there. Um she was talking about the 
I know it's getting long. She's like I'm done. Um

1:21:31.120,1:21:37.120
the um the continuum of need is something that 
is rare to Cedar Lake and it's something that I

1:21:37.120,1:21:43.360
like which is one of the reasons that it's where 
I'll retire. Um because having worked both sides,

1:21:43.360,1:21:51.360
the cool thing about it is um if you say my 
brother's IQ was 69 and he was able to live in an

1:21:51.360,1:21:55.920
apartment and they went over every you know day or 
probably not even that often, probably once a week

1:21:55.920,1:22:00.160
and just checked things or whatever. Just depends 
on the frequency the person needs. Yeah. And then

1:22:00.160,1:22:05.120
he developed, I don't know, diabetes and he had to 
have somebody helping him with his meds every day.

1:22:05.120,1:22:10.800
Okay. So then he might get a little more. Well, 
then let's say he, and this would be a real thing

1:22:10.800,1:22:15.760
with him, he didn't exactly eat like he needed 
to to follow his diabetic plan. So, they said,

1:22:15.760,1:22:19.120
you know, you probably need to come over here in 
one of the group homes or something so we could be

1:22:19.120,1:22:25.680
with you 24/7 because the rating in the cabinet is 
not working for you. So, let's say that, you know,

1:22:25.680,1:22:35.120
he stays there for a good while, but then at um 
60 he starts developing uh dementia or let's say

1:22:35.120,1:22:40.960
something physical happens and he's not a big guy, 
but pretend he is, and he needs two or three staff

1:22:40.960,1:22:48.000
to transfer him. They're not going to be able to 
continue to support him. Okay? So the cool thing

1:22:48.000,1:22:53.920
is he can come to us in one of the ICs but still 
stay in the Cedar Lake family. He's still part

1:22:53.920,1:23:00.000
of it. He doesn't have to go to the nursing home 
as opposed to people who don't have that cycle or

1:23:00.000,1:23:09.760
that array of services because the waiting list 
for our ICF is minimum 5 to seven years and most

1:23:09.760,1:23:15.440
of the calls we get as you can imagine because of 
the level of need are usually emergent. you know,

1:23:15.440,1:23:19.680
it's somebody from a hospital or it's it's 
anCCL provider saying, "We can't support

1:23:19.680,1:23:26.400
this person anymore." Well, I've got nothing 
today. Um, so that's very helpful for us,

1:23:26.400,1:23:31.760
but it's not something that the rest of the state 
has. So, see, like, shameless plug here. We've

1:23:31.760,1:23:38.880
been in in the area for 51 years and we have folks 
that um we are still with us that have have been

1:23:38.880,1:23:45.040
with us for 51 years and several of them have 
lived across every scenario that we just have

1:23:45.040,1:23:52.800
described today. Um and so um it's actually Jeff 
that um I I quote often when I when I talk about

1:23:52.800,1:23:59.520
he's sorry he's their director. Um but uh he uh he 
says once you're part of that Cedar Lake family,

1:23:59.520,1:24:05.360
you're a part of that Cedar Lake family. Uh when 
the ICF first opened, we my part of the company

1:24:05.360,1:24:10.560
didn't exist. So then once when my part opened, 
they had some folks that were appropriate for our

1:24:10.560,1:24:15.840
program. Um and then we've we've served them until 
we just can't serve them anymore. And so they're

1:24:15.840,1:24:22.320
transitioning back to the locks. Actually, um the 
two of us are working on a on a move tomorrow. uh

1:24:22.320,1:24:28.080
and and and we've serve we've served her for close 
to 20 years. She started out in an apartment. She

1:24:28.080,1:24:33.920
moved to staff residence um and then tomorrow 
is moving into the ICF because of her decline

1:24:33.920,1:24:39.520
fall. She's just a lot of continued decline and 
needing that extra support. And so um and we have

1:24:39.520,1:24:43.840
folks who you know they might have lived together 
or not not necessarily lived together but lived

1:24:43.840,1:24:52.000
in staff residences. Um we we generally keep male 
and female separate houses but they dated and now

1:24:52.000,1:24:57.120
one of them lives in the ICF location but the 
other still at the residence and we still make

1:24:57.120,1:25:02.480
sure they get to go on dates and see each other 
and visit and and that continuum of care um is

1:25:02.480,1:25:06.960
is something that uh I think we should be proud 
of. So I just want to take a minute to brag about

1:25:06.960,1:25:13.440
it. And it goes all the way through. Um there are 
other providers that at the time that somebody's

1:25:13.440,1:25:17.520
health declines to the point that they're needing 
hospice, they would take them to a hospice

1:25:17.520,1:25:23.760
um or take them to a nursing home. Um they we do 
hospice in house. They do hospice right in their

1:25:23.760,1:25:30.880
own room in their bed. Um so when we say it's 
the circle of life, that last chapter is on we

1:25:30.880,1:25:35.760
want them home. And we would do the same uh in our 
community setting too as long as it was something

1:25:35.760,1:25:41.760
that we could feasibly do with a 1:3 ratio. So, 
let's go through Medicaid. Try care. Evidently,

1:25:41.760,1:25:47.280
that's a bad connect thing. Whoever asked 
about that one. Um, I'm not any help on that,

1:25:47.280,1:25:53.920
but she said it was bad. So, and to keep trying, 
I think. Um, how to apply for the Michelle P seven

1:25:53.920,1:25:59.680
counties or the sheet that takes you through 
the the the website if you're really I mean,

1:25:59.680,1:26:07.840
because maybe you're good at that stuff. Yeah. Um, 
how what to apply for all of it. Yeah. I was going

1:26:07.840,1:26:12.960
to say just apply for everything and keep them 
tell you. Yeah. And if you go to seven counties,

1:26:12.960,1:26:18.160
this is going to be easier because they're 
going to be able to tell you um what they need.

1:26:18.160,1:26:26.560
Remember, we need a diagnosis prior to 21. Okay. 
You need that IQ score if you can get it. And I

1:26:26.560,1:26:30.560
is there the schools don't like to give that for 
some reason. Is it just because they don't usually

1:26:30.560,1:26:36.000
have a psychologist doing the test? Oh, do you do 
it now? They don't always do the cognitive every

1:26:36.000,1:26:42.320
single time because once you get to a certain age 
it may not change. So that might be but no we'll

1:26:42.320,1:26:48.960
do it. If a parent requests the cognitive we'll 
do it. All right. So request it and keep it. Yes.

1:26:48.960,1:27:00.080
Score. Is that um the bell curve is that the score 
reflect um like the score increased with age or is

1:27:00.080,1:27:05.280
not typically. Now what she was saying though is 
it may while they're school yet there may be some

1:27:05.280,1:27:13.120
differences while they're still in school but you 
know the third grader oh that may change the other

1:27:13.120,1:27:17.840
thing that I will tell you is that once the child 
turns 18 that goes to the adult well maybe it's

1:27:17.840,1:27:24.640
not even 18 is it 16 when they start using the 
adult yes 16 so that's going to be a different

1:27:24.640,1:27:28.880
they're going to score it different a different 
scoring process and a different thing so there's

1:27:28.880,1:27:35.360
the adult version the children's version So okay 
that is so when I was the ARC chair I um always

1:27:35.360,1:27:39.840
wanted to make sure if they were 16 that when we 
were doing rehab before they graduated I wanted

1:27:39.840,1:27:44.800
to make sure that we were doing we included the 
cognitive and then we'll reabal with the cognitive

1:27:44.800,1:27:49.200
but the adult version of it. Yeah I apologize you 
don't need to if they're third grade but don't let

1:27:49.200,1:27:55.840
them get 21 without getting it. That's correct. 
Yeah. Yeah. So sometimes too uh what they'll do

1:27:55.840,1:28:03.680
is they'll accept your application with a eval 
for the weight list, but then let's say they're

1:28:03.680,1:28:11.120
16 when you get them on the wait list, but now 
they're 26 and they're getting their allocation.

1:28:11.120,1:28:18.240
Uh because of that 10-year gap, they will say that 
is too old and you need to retest. So they they

1:28:18.240,1:28:23.520
accepted your first one, but then want a second 
one. And so just kind of keeping that in mind if

1:28:23.520,1:28:28.480
it if it does become they'll call it that one's 
too old is what they'll say and they'll I would

1:28:28.480,1:28:34.080
get an adult one if that makes sense. Somewhere 
18 19 I would try to get a IQ score. So you need

1:28:34.080,1:28:39.600
to have that keep that. Yeah. So what I'm saying 
is even though you have that and you and they may

1:28:39.600,1:28:44.880
but if you have that and you get another testing 
it won't be like what I was saying earlier where

1:28:44.880,1:28:49.440
the new test shows intellectual disability but you 
don't have one prior. If the new test still shows

1:28:49.440,1:28:54.960
it it's fine. Yeah. So, keep your test scores. 
Um, I have families come in and they bring like

1:28:54.960,1:29:00.960
a box. I'm like, "Okay, so I don't need all the 
pretty artwork. I appreciate it, but you know,

1:29:00.960,1:29:06.800
that's not something you necessarily have to 
keep." But your annual reports that have your OT,

1:29:06.800,1:29:16.000
PT, speech, all that testing stuff, okay, that is 
crucial. Medical, you need to keep your medical,

1:29:16.000,1:29:21.680
especially if they've had any surgeries. Okay, 
just think in terms of you're trying to draw a

1:29:21.680,1:29:28.880
picture of your child's needs to somebody. What 
would you want them to know? Okay, so you should

1:29:28.880,1:29:34.960
be getting when if your child is regular diploma 
and graduating after four years of high school

1:29:34.960,1:29:42.000
as a senior, you should be getting from your art 
chair a transition packet. What do we officially

1:29:42.000,1:29:49.200
call summary of performance that should have 
the latest IEP? It should have the latest um

1:29:49.200,1:29:55.840
evaluation on there. Um we they may include some 
other things, but those things should be given to

1:29:55.840,1:30:03.840
you or your child when they graduate. Now, I know 
how that goes. As a former archer, like I said,

1:30:03.840,1:30:09.760
that didn't always make it home. And I know 
that they also can request, we keep everything

1:30:09.760,1:30:14.960
on file. You can come back and request for any 
of that information from us after graduation.

1:30:14.960,1:30:21.120
The trick is it has to be your child requesting 
it if you don't have guardianship. Okay? So,

1:30:21.120,1:30:25.600
I will sometimes have parents call me and say, 
"Hey, I need so and so a copy of this and this."

1:30:25.600,1:30:30.640
I'm like, "Great. Hope they're doing well. 
They need to email me." And I said, "You know,

1:30:30.640,1:30:36.720
they could always email me from your email and 
say, "Hey, I'm using my mom's email to email

1:30:36.720,1:30:44.000
you. Read into that as you. I don't really care. 
As long as it comes from the child, that's great.

1:30:44.000,1:30:49.920
if they go into YATP is saying the same thing 
when they leave YATP at the age of 21 they

1:30:49.920,1:30:54.640
should be walking out of there with a summary of 
performance as well and so that is just it's just

1:30:54.640,1:31:00.560
given to them at a different time so when anytime 
you leave you know or you leave county schools you

1:31:00.560,1:31:07.440
you ask for that and we have access to it so it's 
not hard for us to get it now physical copies we

1:31:07.440,1:31:13.360
destroy after five years is that right three years 
sorry we do destroy those after three years once

1:31:13.360,1:31:18.160
they believe. But so that's going to be all of the 
files that we have with all the physical files,

1:31:18.160,1:31:22.160
the physical files, but we have everything 
online. So at this point, if you have a younger

1:31:22.160,1:31:26.560
student and you don't have everything from the 
beginning, you can always request those, too,

1:31:26.560,1:31:32.400
to kind of create your binder starting now. Yeah, 
you guys are in great shape. I mean, you know,

1:31:32.400,1:31:36.960
the families I have, they're like, well, they 
went to so and so school back in 70. And I'm like,

1:31:36.960,1:31:42.720
can you call that school? We find those, 
too. Don't worry. Yeah, I can call them, but

1:31:43.680,1:31:48.080
So, keep that. When you apply for guardianship, 
one of the things that's going to happen is

1:31:48.080,1:31:53.120
they're going to have three professionals um 
evaluate the person. A psychologist, a social

1:31:53.120,1:31:59.600
worker, and I believe a physician. Is that right? 
Um keep those reports because that's helpful.

1:31:59.600,1:32:05.120
Uh keep keep your guardianship information. 
Everything that comes from the court, I would

1:32:05.120,1:32:11.200
keep that in a separate court thing. Okay? Same 
thing with social security. I keep all the social

1:32:11.200,1:32:15.600
security stuff separate. Now, that's just how I 
do it. I have social security, I have housing,

1:32:15.600,1:32:21.920
I have, you know, the different types of things. 
Um, but medical records, um, any surgeries,

1:32:21.920,1:32:27.840
if it is an acquired brain injury, please make 
sure and keep all those neurological things, ranch

1:32:27.840,1:32:34.960
scores. Yeah. For brain injuries. So that they can 
see how that changed. If your child has seizures,

1:32:34.960,1:32:40.880
it's really, really, really helpful. seizures or 
if they've had um a long history of mental illness

1:32:40.880,1:32:46.720
with some mental health medications, if you could 
keep a running go of the medications that they've

1:32:46.720,1:32:54.400
taken and the dosage and what happened, and I know 
that seems like a lot, but 20 years down the road,

1:32:54.400,1:32:58.160
if something happens and they want to start 
messing with the med and you say, "Oh, no, no, no,

1:32:58.160,1:33:04.960
no. We took that one and this is what happened." 
Okay? So, keep those. Not for I'm not talking

1:33:04.960,1:33:11.200
about antibiotics and but for those two I've seen 
it be really important. Yeah. The gentleman I'm a

1:33:11.200,1:33:16.880
guardian for just as an example. He is prescribed 
lithium which is an old drug that they don't

1:33:16.880,1:33:22.240
really like to prescribe anymore. And and so there 
have been several times that they've said well

1:33:22.240,1:33:29.840
let's try to wean him off. We I was naive when I 
first took over a guardianship several moons ago

1:33:29.840,1:33:35.040
and was like uh cuz I they were explaining to me 
like they're going to stop manufacturing this and

1:33:35.040,1:33:40.640
we're going to have a problem when you can't get 
a hold of it. And uh and we both times that we

1:33:40.640,1:33:46.000
tried uh we ended back up in in the hospital. Uh 
and so we were like, "Nope, don't mess with that

1:33:46.000,1:33:52.320
cocktail mix. It's working." Um, but I, you know, 
we had to have, I switched residential providers

1:33:52.320,1:33:58.400
and if that residential provider wasn't on the 
team back when all of that happened 20 years ago,

1:33:58.400,1:34:03.680
then they don't know it. And and so, um, that's 
where that that kind of thing can be helpful.

1:34:03.680,1:34:08.160
Yeah. A lot of dirty drugs, they'll say, "Let's 
try something new." But if you've got, okay,

1:34:08.160,1:34:13.040
we've done that four times, so we're good. 
Yes. Um, I was just going to suggest with the

1:34:13.040,1:34:19.040
guardianship paperworks because I'm dealing with 
this now is that um, like when I asked the judge,

1:34:19.040,1:34:23.920
do I have to carry this around with me everywhere 
I go to prove, you know, in case we end up in

1:34:23.920,1:34:28.000
the hospital or in case, you know, for whatever 
reason I have to carry this paperwork around. And

1:34:28.000,1:34:34.480
she kind of blew it off like, oh no, as if they'll 
believe me. Um, they won't. But I do. Um, but what

1:34:34.480,1:34:40.400
someone suggested to me was to scan it and have 
it on your phone and then you can access it. Now,

1:34:40.400,1:34:45.040
that still makes me a little nervous because if 
somebody's looking at your phone, it's harder to

1:34:45.040,1:34:51.600
read than if the paper's in front of you. Um, 
my concern is, and just an FYI, that because I

1:34:51.600,1:34:58.720
know I've brought this up in other meetings, is my 
daughter is capable of being with her friends and

1:34:58.720,1:35:08.240
away from me and her ID does not say that she is 
not her own guardian. So I have been like reaching

1:35:08.240,1:35:16.720
out to legislation to say put something on the 
ID on the state ID that says she is not her own

1:35:16.720,1:35:23.120
legal guardian so that and I've talked to police 
officers like look you pull her over you know

1:35:23.120,1:35:30.080
what she's going to jail like but you can't you 
know and um so I'm still trying to advocate for

1:35:30.080,1:35:34.880
something that says that. So, at this not that 
I want your daughter to go to jail, but she can

1:35:34.880,1:35:39.360
still go to jail even though you have a guardian. 
Yeah. Well, but I mean, if they don't understand

1:35:39.360,1:35:43.600
her, they're going to think she's drunk. This is 
my point. Like, go to jail for the wrong reason.

1:35:43.600,1:35:48.880
Or she would. She's such a people pleaser that 
she might just agree to whatever they're saying.

1:35:48.880,1:35:57.600
Did you do this? Yes. Understand? Because of those 
breakdowns in our systems, I always re I recommend

1:35:57.600,1:36:03.440
a medical bracelet now. And medical bracelets 
are like they're they're trendy now. They're not

1:36:03.440,1:36:08.400
necessarily your traditional medical bracelet. 
Well, and I do have that for her, but like you

1:36:08.400,1:36:11.760
go to the tattoo person, they're not looking for 
a medical bracelet. They're just looking at your

1:36:11.760,1:36:20.240
ID. Oh, yep. You're 18. Okay, here you go. Where 
do you want it? On your cheek. Sure. You know, but

1:36:20.240,1:36:22.400
she carry it in her purse or wallet. Well,

1:36:22.400,1:36:28.080
she carries her ID. Would you 
like fold it up? The paperwork?

1:36:33.520,1:36:37.920
So, as far as medical though, you can ask 
them to scan that and put it in my chart,

1:36:37.920,1:36:43.920
right? Yes. For Norton um what is it? There's 
one that does Norton Epic. Thank you. Um that

1:36:43.920,1:36:48.000
does the But that would help with medical. 
As far as law enforcement, it's different,

1:36:48.000,1:36:55.200
right? But what I've decided to do is you can 
order IDs like on any page and then have that

1:36:55.200,1:37:04.160
with her regular ID. So if she is showing some her 
ID, it's attached so that it at least gets their

1:37:04.160,1:37:10.400
attention even though it's not a legal document. 
Um but anyway, that's my little soap box. Well,

1:37:10.400,1:37:15.040
and it is different challenges when somebody 
is able to go out with their friends. I mean,

1:37:15.040,1:37:20.640
I've experienced a lot of those challenges with my 
brother as far as you know, I've got a girlfriend,

1:37:20.640,1:37:24.640
she's from Texas, and I'm like, "How did you meet 
her on Facebook?" and I'm just and you know and I

1:37:24.640,1:37:32.160
need more of my allowance money so that I can send 
it to her and it can get really you know it it's a

1:37:32.160,1:37:36.480
whole different there's problems with these folks 
that these needs and then there's problems with

1:37:36.480,1:37:44.000
these folks so it's just part of it but yeah you 
can get the u the guardianship in Epic um one of

1:37:44.000,1:37:50.960
the things that I've done with the hospitals uh 
for the location he goes to through Norton's and

1:37:50.960,1:37:57.840
I had I've worked with Norton and Norton's allowed 
to set up so that they have to get verbal consent.

1:37:57.840,1:38:03.680
And so any like he could walk in to Norton and 
be there by himself and they've got to call me

1:38:03.680,1:38:08.240
and then I'm like, "What are you doing? What are 
you doing there?" Oh, obviously that doesn't stop

1:38:08.240,1:38:15.520
a tattoo. But Exactly. Cuz when you said that, 
I thought, "Yeah, I can see him doing that."

1:38:15.520,1:38:25.040
Pretty girl said, "Yep, he'd have a big tattoo 
on his cheek." And I'd be like, So, um, but those

1:38:25.040,1:38:30.320
are the kinds of things that you need. Just don't 
get rid of stuff. You know, get you a a fireproof

1:38:30.320,1:38:39.440
box that has some, um, birth certificate. 
This is the 21st century. They can scan it.

1:38:39.440,1:38:47.920
I have a fireproof box. Can you tell? That's so 
true. You can scan it. Save it to a hard drive.

1:38:49.200,1:38:56.960
They're going to force me into retirement. 
Oh, because of this. Okay, so scan it. But

1:38:56.960,1:39:04.240
that kind of stuff is what you need. Um, 
that's so sad. First certificates. Um,

1:39:04.240,1:39:08.960
now the whole uh proof of citizenship is a big 
deal. So, let's make sure that you have whatever

1:39:08.960,1:39:14.640
you need for that. Copy your social security 
card. Um, which that's a whole another thing.

1:39:14.640,1:39:20.320
um coordinating with um OVR and waiver. OVR and 
waiver. OVR, that's what I was talking about when

1:39:20.320,1:39:25.840
I said there are some state resources that aren't 
part of the waiver, but that work with the waiver

1:39:25.840,1:39:33.360
and can be very very very helpful um with jobs and 
things like that. I haven't worked a lot with them

1:39:33.360,1:39:43.840
in in Kentucky, but I used to work with them a 
ton in Texas. So um uh the OBR program has to uh

1:39:43.840,1:39:50.880
funding has to be exhausted before waiver funding 
for job placement and discovery can take place. Uh

1:39:50.880,1:39:57.840
you're in great hands here in Olden County. 
They have a great um vocational program. Uh

1:39:57.840,1:40:07.440
not everybody is that fortunate. Um and so um if 
your person is interested in in vocation, I highly

1:40:07.440,1:40:14.320
encourage you to take advantage of the resources 
here within the school system. Uh if you know they

1:40:14.320,1:40:21.360
have job placement after high school uh and they 
sustain that but eventually want a second job or

1:40:21.360,1:40:28.240
a different job or more hours, then the call does 
go to the office for vocational rehabilitation.

1:40:28.240,1:40:34.800
And uh if at that time you have a waiver, the case 
manager can definitely assist with contacting OVR,

1:40:34.800,1:40:40.560
but also they can call themselves. If you're 
the guardian, you can call on their behalf.

1:40:40.560,1:40:46.960
Um but they have to be part of the process. You 
can't do it for them. By the time OVR picks up,

1:40:46.960,1:40:52.800
they are required to be a participating member 
because it's their job and their job placement.

1:40:52.800,1:40:59.440
Um, and you would go to the OVR office or place 
the call to the OVR office to get an appointment.

1:40:59.440,1:41:06.800
Highly encourage you have an appointment. Don't 
show up. You won't get help. And then so um you

1:41:06.800,1:41:13.280
should start getting paper to work for that right 
now because of um all the barriers maybe with

1:41:13.280,1:41:19.680
OVR having some issues as far as being closed to 
work with with people that are looking for jobs.

1:41:19.680,1:41:24.000
they are really encouraging you to start applying 
like your sophomore and junior year for it because

1:41:24.000,1:41:28.080
that gets you on the list and what they can start 
doing is working with your students to remove

1:41:28.080,1:41:33.040
barriers. So let's say for example um they have 
helped students get their license because that

1:41:33.040,1:41:37.600
has been a barrier for them. They want them 
to drive um if there are we do pre-employment

1:41:37.600,1:41:41.600
transition services which is called preex 
and so that is at all the high schools

1:41:41.600,1:41:47.600
um they can start participating in those kind of 
activities and get that help prior to graduation.

1:41:47.600,1:41:52.000
um they do come if your student is in a highly 
structured classroom in any of our high schools

1:41:52.000,1:41:56.240
or if they're the young adult transition program, 
they do come in once a week and do pre-employment

1:41:56.240,1:42:00.480
transition with them as well. So, we've got a 
representative that comes in and works with the

1:42:00.480,1:42:06.640
classes and and teaches classes. So, um they they 
want to do everything they possibly can to remove

1:42:06.640,1:42:13.360
the barriers prior to them graduating and getting 
on and and getting on as an official client. So,

1:42:13.360,1:42:23.840
yeah. So uh once the OVR dollars are exhausted 
for your person then uh that funding is exhausted.

1:42:23.840,1:42:29.600
It's important uh that you get documentation 
that the funding source is exhausted. OVR's

1:42:29.600,1:42:35.600
system of maintaining that documentation of 
exhausted dollars is not fantastic. Uh so

1:42:35.600,1:42:40.560
if you can help them out, it's going to work in 
your favor, cause a few less headaches. Um they

1:42:40.560,1:42:46.000
don't usually just offer that up. That's not a 
letter that you're going to get in the mail. So,

1:42:46.000,1:42:51.360
if they are involved in conversations and 
the conversations are, okay, well, you know,

1:42:51.360,1:42:56.080
we're done now because we've completed all of 
the funding that we have available, you need

1:42:56.080,1:43:01.520
to ask them to get that in writing. Um, and then 
if you have a waiver, waiver can pick up at the

1:43:01.520,1:43:08.560
time that those dollars are exhausted. Uh job 
support is available in both the Michelle P and

1:43:08.560,1:43:15.360
the SCL waiver and there's a step-by-step process 
depending on, you know, are we in job discovery

1:43:15.360,1:43:21.920
phase and helping figure out what type of job we 
want or um they've got a job, they've sustained

1:43:21.920,1:43:27.920
their job and just need regular check-ins, which 
is a a supported employment long-term support

1:43:27.920,1:43:35.840
plan. and and the the waiver does pick up uh in 
those areas and job makes a big difference. Um,

1:43:35.840,1:43:42.000
my mother had my brother very isolated and and 
didn't and when I got involved, one of the things

1:43:42.000,1:43:46.560
I did, I said, "You need to work." I mean, he 
was 19 years old. I was like, "Let's go." And

1:43:46.560,1:43:52.240
he right now he's not able to work anymore. He had 
some health issues developed. But, um, he is very

1:43:52.240,1:43:58.000
proud of the fact he'll tell people, "I'm not on 
SSI. I'm on social security because I made money."

1:43:58.000,1:44:03.040
And that is a very big deal to him. He earned his 
own social security. He that social security comes

1:44:03.040,1:44:08.240
from him, not from our parents. He's got Medicare 
and he earned it. He's retired is what he will let

1:44:08.240,1:44:13.760
you know. Um, so well, if you think about yourself 
too, you you get some meaning in your own life

1:44:13.760,1:44:21.600
from your employment, right? And it it they're 
just like us. There's um a couple of places I

1:44:21.600,1:44:27.920
don't know if anybody else is at this point. Um 
but if you get um frustrated with OVR but like

1:44:27.920,1:44:34.800
I mean you can do stuff at school which they that 
is not the issue but if there's outside of school

1:44:34.800,1:44:40.480
things that you are frustrated with there's places 
like Edge Employment and Zoom Group that also do

1:44:40.480,1:44:47.120
the same sort of services that you do not have 
to pay for that they can um yeah so that both of

1:44:47.120,1:44:54.640
those places have grants from the um Commonwealth 
Council on Disability and they are currently using

1:44:54.640,1:44:59.520
those that those grant dollars to assist with and 
that and also with the pre-employment transition

1:44:59.520,1:45:04.800
that we can offer even if um they are coming into 
the schools and working with your student as long

1:45:04.800,1:45:09.120
as they've been approved um through the system 
and they are working with whoever our outside

1:45:09.120,1:45:13.920
providers are that actually come in they can also 
work with them outside the school day as well. So

1:45:13.920,1:45:18.480
um we work with everybody counts we've worked 
with a couple of other places but um over the

1:45:18.480,1:45:22.560
summer they can also do things with your students 
as well. So that has to start. You have to be 14

1:45:22.560,1:45:27.600
though before we can apply for pre-employment 
transitions services. So know that too. So I

1:45:27.600,1:45:33.760
have two daughters at South Bodm. Yes. And I want 
to make sure that because I don't think they're

1:45:33.760,1:45:39.280
involved in any of this and I would let them know. 
I filled out the paperwork, right? Yes. Okay. I

1:45:39.280,1:45:43.920
know. Yes. I know who your daughters are. Okay. I 
think one might be and I don't know what the other

1:45:43.920,1:45:48.240
one is. I think there's only one that I've got on 
my list. Okay. I just want to make sure they're

1:45:48.240,1:45:56.160
both there. Yes. So, let me check. Um, okay. I'll 
look because I know who your daughters are. Yes,

1:45:56.160,1:46:02.240
I got you. And so, but I'm pretty sure I just said 
one and not the other. Okay. Yeah. Um, I don't

1:46:02.240,1:46:07.840
remember who had the OVR question. Did we answer 
that? Okay. And we talked about the college.

1:46:07.840,1:46:11.360
Depends on where they want to go and if they get 
accepted. I mean, that's no different than really

1:46:11.360,1:46:16.480
anybody else, except for the fact that with ADA, 
um there are some accommodations that the colleges

1:46:16.480,1:46:22.720
are required to provide um to help them succeed 
in college. Um the annual social security report,

1:46:22.720,1:46:28.160
keep it consistent. Look at what you did last 
year. I'm not saying lie, but don't, you know,

1:46:28.160,1:46:32.640
um guardianship and the guardianship report. 
Again, that depends on the on the state and

1:46:32.640,1:46:41.600
where or on the um county and where you are. 
Um, one thing, so on the the family group that's

1:46:41.600,1:46:49.040
happening, family cares is OC Cares. OC Cares, we 
have you guys all signed in back here. Is there

1:46:49.040,1:46:54.480
we would were talking about Jessica was talking 
about sharing your contact information with this

1:46:54.480,1:46:58.640
wonderful woman who has set all this up so that 
she can let you know about these meetings. Is

1:46:58.640,1:47:02.880
there anybody that does not want their information 
shared with her? They might not want to announce

1:47:02.880,1:47:08.480
that to the group. That's that was my concern. 
You don't know how to do that. If you don't want

1:47:08.480,1:47:13.600
on the list, sir, come and let us know. If you 
don't want if when you walk out, if you could put

1:47:13.600,1:47:19.040
a star by your name, meaning you do not want us to 
share your information. I would highly encourage

1:47:19.040,1:47:25.120
you not to do that though because it's a wonderful 
group. So, and then and you'll get emails from me.

1:47:25.120,1:47:31.280
It's not very often. Yes. And eventually maybe 
we'll get, you know, Facebook, whatever. Oh,

1:47:31.280,1:47:37.360
we're not on Facebook. We're not we're not that 
worry. Um, so yes, please, as you're walking out,

1:47:37.360,1:47:43.680
put a star by your name if you do not want us 
to share your contact information. Does anybody

1:47:43.680,1:47:50.160
else have something questions about anything that 
we didn't cover? If there are no other questions,

1:47:50.160,1:47:53.520
I just want to take two seconds of your time 
because I know I want to get you guys out of here.

1:47:53.520,1:47:59.280
Um, we are going to stand over here. Wait, wait. 
Yeah, let me watch this. I'm not really excited

1:47:59.280,1:48:05.120
about it, but I'll be there. Hi. Um, I said we 
should have just kept it up here because it's

1:48:05.120,1:48:09.520
sitting there. So, our next parent workshop 
is on February 10th, and it will be here.

1:48:09.520,1:48:14.480
We're actually going to be in the other room. 
Um, fishing will be over here that day. But,

1:48:14.480,1:48:20.960
we are having a family resource fair and we have 
been working really hard and inviting lots of

1:48:20.960,1:48:25.440
resources in our community. And right now we're up 
to 25 different vendors that are coming. They are

1:48:25.440,1:48:29.680
covering lots of different opportunities. 
Um we're looking at therapy resources,

1:48:29.680,1:48:35.360
post-secondary opportunities, recreational 
advocacy, financial transition, summer camps,

1:48:35.360,1:48:41.600
and a lot more. Um so we have been Oh, look, 
it's coming over here now. Okay. Uh it is here

1:48:41.600,1:48:48.240
I am. Um and so we're hoping that that's going to 
grow. I will advertise who's coming officially. We

1:48:48.240,1:48:54.480
are waiting until we get more. Um we think 25 is 
great. We're super pumped about 25, but um we want

1:48:54.480,1:48:59.120
to make sure that you know everybody that will 
be there. So um that is this flyer with just that

1:48:59.120,1:49:03.680
date information on it and just be watching your 
email for the full one to come out that has all

1:49:03.680,1:49:09.520
of the vendors that will be participating in that. 
So but that's February the 10th here from 6:00 to

1:49:09.520,1:49:18.880
10:00. Okay. Or 6:00 to 10. Oh gosh. No. 6 to 8. 
Goodness gracious. No. No. 6 to 8. Sorry. I know.

1:49:18.880,1:49:23.520
Lordy, you are going to be here all night long. 
Yeah. No. Yeah. Sorry. I get it. I won't either.

1:49:23.520,1:49:29.360
I'll be home. Um, but there's this. And then also 
again, one more time, I'm going to plug OC Cares,

1:49:29.360,1:49:34.960
which is on the 27th, which will be here from 6:00 
to 8 as well. And it's very much like this. And we

1:49:34.960,1:49:39.760
just sit around and we do very structured things, 
too. But I mean, I have an agenda, but we talk

1:49:39.760,1:49:47.040
about things that we're working on, problems that 
we're having. Um I mean we'll rehash this whole

1:49:47.040,1:49:52.160
meeting of course and talk about anything that 
you know we want to dig into more and there's been

1:49:52.160,1:49:57.120
some really great things. So one of the things we 
we do at OC Cares is wouldn't it be great if and

1:49:57.120,1:50:00.160
so parents have been sharing different things 
and one of the things that came out of that is

1:50:00.160,1:50:04.560
is having something like this fair for all the 
resources. Um another thing that has come from

1:50:04.560,1:50:08.880
this is that we talked about sensitivity training. 
So when you're in an ARC meeting and you have to

1:50:08.880,1:50:14.160
be delivered news it's not that great. What's 
the best way to do that? So actually tomorrow

1:50:14.160,1:50:18.800
um all of our ARC chairs, our school psyches, our 
coaches are getting trained on OVAC on sensitivity

1:50:18.800,1:50:23.600
training, but that came from the group that was a 
suggestion from the family groups. Um there's been

1:50:23.600,1:50:30.240
a lot of other suggestions that have really made 
a difference and so um we really for another and

1:50:30.240,1:50:37.920
we we really um appreciate that as as district 
leaders on that um and hearing from the parents

1:50:37.920,1:50:42.720
because that's really important to us. And so, 
um, it's just been a really great group this year.

1:50:42.720,1:50:47.040
We've really enjoyed it. And so, we've really 
learned a lot and and gained a lot and a lot of

1:50:47.040,1:50:51.280
things have come from it that have been really 
great for our students and our families. So,

1:50:51.280,1:50:58.160
that's my and thanks to this meeting last year 
when you made the comment and that I pulled Sherry

1:50:58.160,1:51:02.240
aside and said, "What do you think?" She's like, 
"Let's do it. Let's do it." I was so excited cuz

1:51:02.240,1:51:08.720
really that is the best thing you could do. Again, 
watch the Willoughbrook thing to watch for five

1:51:08.720,1:51:15.200
minutes. Yeah. Um, speaking of sensitivity, the 
language that's used in that video is from 1970

1:51:15.200,1:51:20.000
something. So, it's a very different language. 
People were always like, you know, but that's

1:51:20.000,1:51:25.760
what we were when I had my training, that's what 
the terminology was. But, um, but yeah, it does,

1:51:25.760,1:51:31.040
if anything, look at it from a standpoint of 
that's where we were and the only reason we're

1:51:31.040,1:51:37.680
where we are now is because of parents. It 
was not Kennedy. It wasn't any of those guys.

1:51:37.680,1:51:47.280
It was parents. It was families. Everything was 
because of families. Any other questions for us?

1:51:47.280,1:51:51.040
Thank you guys so much for being here. 
We appreciate it. The resources and

1:51:51.040,1:51:54.640
um you all have their information. So, if 
you have any other card or any questions,

1:51:54.640,1:51:58.000
you've got their card. So, thank you guys so much.